ERASMUS+ MENTORING FOR INCLUSION
Fundación Isabel Gemio coordinates a new ERASMUS PLUS – YOUTH – 2022-2-ES02-KA220-YOU-000092224 QUALITY YOUTH MENTORING FOR INCLUSION: A BIG BROTHER TO OVERCOME SHARED BARRIERS, cofunded by the European Union. The entities that participate in this initiative are:
- Federación Española de Enfermedades Neuromusculares (Spain), a non-governmental organization that brings together associations and foundations for neuromuscular diseases. It currently represents more than 60,000 people affected throughout Spain.
- Parent Project per la Ricerca sulla Distrofa Muscolare (Italy), an association of patients and parents with children affected by Duchenne and Becker muscular dystrophy.
- Rare Diseases Croatia (Croatia) an umbrella organization that gathers 29 other non-profit organizations acting on behalf of patients with rare diseases, as well as more than 900 patients with rare diseases that don’t have their own patient organization.
- Cyprus Alliance for Rare Disorders (Cyprus), a non-profit organization which main purpose is to provide a dynamic and unified voice to the approximately 60,000 patients with rare diseases found in Cyprus today.
PURPOSE OF THE PROJECT
The aim is to create a network of national rare disease organisations to design and implement an empowerment strategy for young people living with barriers, called QUALITY YOUTH MENTORING FOR INCLUSION, to become mentors and big brothers to other young people and children experiencing the same barriers from all over Europe, in order to guide them in a virtual way to develop their self-confidence, learn about their situation and consequences, and discover mechanisms to achieve inclusion.
PROJECT RESULTS
- R1: METHODOLOGICAL GUIDE FOR THE TRAINING AS BIG BROTHER OF YOUNG PEOPLE WITH RARE DISEASES
- R2: NON-FORMAL RESOURCES FOR THE INCLUSION OF YOUNG PEOPLE WITH RARE DISEASES
- R3: “YOU’RE NOT ALONE” NETWORK
- R4: “BIG BROTHER FOR INCLUSION” PLATFORM
- R5: VIRAL CAMPAIGN “A BIG BROTHER TO REACH THE FUTURE”
PROJECT OBJECTIVES:
- Objective 1: To promote the inclusion of young people and children with RD (Rare Diseases) through active participation and volunteering.
- Objective 2: To develop the competences of young people with RD, preparing them for life, but also teaching them to be protagonists in the inclusion of other young people with barriers.
- Objective 3: To improve the quality of the work, activities and practices of the partner organizations by introducing new working methods that make the young people with RD protagonists from a transnational perspective.
- Objective 4: To promote a transformation and change in the field of support for children and young people with disabilities, from being mere beneficiaries to real protagonists of their inclusion.
- Objective 5: Establish European structures capable of fostering this new vision of working with young people with RD and become a reference in the construction of research support policies.
- Objective 6: To generate BIG BROTHERS FOR INCLUSION across Europe capable of changing the vision of rare diseases and of those who suffer from them.
- Objective 7: Promote a more inclusive European culture where local communities, social partners and governments support children and young people living with RD.
TRANSNATIONAL MEETINGS
“This project has been funded with support from the European Commission. This publication reflects the views only of the author, and the Commission cannot be held responsible for any use which may be made of the information contained therein.”