Portada » Noticia de EcoDiario: El Consorcio Internacional de Investigación en Enfermedades Raras quiere aprobar mil nuevos tratamientos

Actualidad, Científicas

Noticia de EcoDiario: El Consorcio Internacional de Investigación en Enfermedades Raras quiere aprobar mil nuevos tratamientos

8 de septiembre de 2017

El Consejo Internacional de Investigación en Enfermedades Raras (Irdirc) informó este viernes que tiene como objetivo aprobar mil nuevos tratamientos para estas patologías y proponer el desarrollo de metodologías que permitan valorar el impacto de los diagnósticos y las terapias aplicadas en estos pacientes.

El Irdirc pondrá en marcha nuevos retos orientados a conseguir diagnósticos más rápidos, tratamientos accesibles y herramientas de valoración más avanzadas. Para ello, pretende desarrollar antes de 2020 unas 200 nuevas terapias y métodos para diagnosticar gran parte de las enfermedades raras.

Puedes leer el artículo completo en el siguiente enlace:

El Consorcio Internacional de Investigación en Enfermedades Raras quiere aprobar mil nuevos tratamientos

—— COMPARTE ESTA NOTICIA

—— MÁS ACTUALIDAD

Otras noticias de la Fundación

Noticias

15 de octubre de 2026

Un ensayo de fase 3 muestra mejoras desde la primera semana con una autoinyección para la miastenia gravis

Un ensayo clínico internacional de fase 3 con 260 pacientes ha mostrado resultados positivos con gefurulimab, una autoinyección semanal experimental para adultos con miastenia gravis generalizada.

Actualidad

10 de octubre de 2026

Enfermedades raras: la salud mental también importa | 10 de octubre

Este Día Mundial de la Salud Mental ponemos el foco en el impacto emocional de las enfermedades raras y en la importancia de cuidar también a familias y personas cuidadoras.

Actualidad

9 de octubre de 2026

Día Nacional del Tercer Sector: compromiso, solidaridad y acción colectiva | 9 de octubre

Cada 9 de octubre se celebra el Día Nacional del Tercer Sector, una jornada para reconocer la labor de miles de entidades sociales que trabajan por los derechos, la inclusión, la solidaridad y el bienestar de la ciudadanía.

Cada noticia es un paso hacia la cura

Detrás de cada acto solidario hay investigación que salva vidas. Súmate y hazlo posible.

Cookie	Duración	Descripción
__cf_bm	1 hour	This cookie, set by Cloudflare, is used to support Cloudflare Bot Management.
_cfuvid	session	Calendly sets this cookie to track users across sessions to optimize user experience by maintaining session consistency and providing personalized services
cookielawinfo-checkbox-advertisement	1 year	Set by the GDPR Cookie Consent plugin, this cookie records the user consent for the cookies in the "Advertisement" category.
cookielawinfo-checkbox-analytics	11 months	This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Analytics".
cookielawinfo-checkbox-functional	11 months	The cookie is set by GDPR cookie consent to record the user consent for the cookies in the category "Functional".
cookielawinfo-checkbox-necessary	11 months	This cookie is set by GDPR Cookie Consent plugin. The cookies is used to store the user consent for the cookies in the category "Necessary".
cookielawinfo-checkbox-others	11 months	This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Other.
cookielawinfo-checkbox-performance	11 months	This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Performance".
CookieLawInfoConsent	1 year	CookieYes sets this cookie to record the default button state of the corresponding category and the status of CCPA. It works only in coordination with the primary cookie.
PHPSESSID	session	This cookie is native to PHP applications. The cookie stores and identifies a user's unique session ID to manage user sessions on the website. The cookie is a session cookie and will be deleted when all the browser windows are closed.
rc::a	never	This cookie is set by the Google recaptcha service to identify bots to protect the website against malicious spam attacks.
rc::c	session	This cookie is set by the Google recaptcha service to identify bots to protect the website against malicious spam attacks.
viewed_cookie_policy	11 months	The cookie is set by the GDPR Cookie Consent plugin and is used to store whether or not user has consented to the use of cookies. It does not store any personal data.
XSRF-TOKEN	2 hours	This cookie enhances visitor browsing security by preventing cross-site request forgery.

Cookie	Duración	Descripción
yt-remote-cast-available	session	The yt-remote-cast-available cookie is used to store the user's preferences regarding whether casting is available on their YouTube video player.
yt-remote-cast-installed	session	The yt-remote-cast-installed cookie is used to store the user's video player preferences using embedded YouTube video.
yt-remote-connected-devices	never	YouTube sets this cookie to store the user's video preferences using embedded YouTube videos.
yt-remote-device-id	never	YouTube sets this cookie to store the user's video preferences using embedded YouTube videos.
yt-remote-fast-check-period	session	The yt-remote-fast-check-period cookie is used by YouTube to store the user's video player preferences for embedded YouTube videos.
yt-remote-session-app	session	The yt-remote-session-app cookie is used by YouTube to store user preferences and information about the interface of the embedded YouTube video player.
yt-remote-session-name	session	The yt-remote-session-name cookie is used by YouTube to store the user's video player preferences using embedded YouTube video.
ytidb::LAST_RESULT_ENTRY_KEY	never	The cookie ytidb::LAST_RESULT_ENTRY_KEY is used by YouTube to store the last search result entry that was clicked by the user. This information is used to improve the user experience by providing more relevant search results in the future.

Cookie	Duración	Descripción
_ga	1 year 1 month 4 days	Google Analytics sets this cookie to calculate visitor, session and campaign data and track site usage for the site's analytics report. The cookie stores information anonymously and assigns a randomly generated number to recognise unique visitors.
_ga_*	1 year 1 month 4 days	Google Analytics sets this cookie to store and count page views.
_gat_gtag_UA_1975075_20	1 minute	Google Analytics sets this cookie for tracking data.
_gid	1 day	Google Analytics sets this cookie to store information on how visitors use a website while also creating an analytics report of the website's performance. Some of the collected data includes the number of visitors, their source, and the pages they visit anonymously.
sbjs_current	session	Sourcebuster sets this cookie to identify the source of a visit and stores user action information in cookies. This analytical and behavioural cookie is used to enhance the visitor experience on the website.
sbjs_current_add	session	Sourcebuster sets this cookie to identify the source of a visit and stores user action information in cookies. This analytical and behavioural cookie is used to enhance the visitor experience on the website.
sbjs_first	session	Sourcebuster sets this cookie to identify the source of a visit and stores user action information in cookies. This analytical and behavioural cookie is used to enhance the visitor experience on the website.
sbjs_first_add	session	Sourcebuster sets this cookie to identify the source of a visit and stores user action information in cookies. This analytical and behavioural cookie is used to enhance the visitor experience on the website.
sbjs_migrations	session	Sourcebuster sets this cookie to identify the source of a visit and stores user action information in cookies. This analytical and behavioural cookie is used to enhance the visitor experience on the website.
sbjs_session	1 hour	Sourcebuster sets this cookie to identify the source of a visit and stores user action information in cookies. This analytical and behavioural cookie is used to enhance the visitor experience on the website.
sbjs_udata	session	Sourcebuster sets this cookie to identify the source of a visit and stores user action information in cookies. This analytical and behavioural cookie is used to enhance the visitor experience on the website.

Cookie	Duración	Descripción
OAGEO	session	OpenX sets this cookie to avoid the repeated display of the same ad.
OAID	1 year	Cookie set to record whether the user has opted out of the collection of information by the AdsWizz Service Cookies.
VISITOR_INFO1_LIVE	6 months	YouTube sets this cookie to measure bandwidth, determining whether the user gets the new or old player interface.
VISITOR_PRIVACY_METADATA	6 months	YouTube sets this cookie to store the user's cookie consent state for the current domain.
YSC	session	Youtube sets this cookie to track the views of embedded videos on Youtube pages.
yt.innertube::nextId	never	YouTube sets this cookie to register a unique ID to store data on what videos from YouTube the user has seen.
yt.innertube::requests	never	YouTube sets this cookie to register a unique ID to store data on what videos from YouTube the user has seen.

Cookie	Duración	Descripción
__Secure-ROLLOUT_TOKEN	6 months	Description is currently not available.
captcha-cookie	1 day	Description is currently not available.
miaportacion_session	2 hours	Description is currently not available.