Si prefieres colaborar con nosotros a través de la donación de algún objeto, cumplimenta el formulario y nos pondremos en contacto lo antes posible, tú eres la fuerza que necesitamos.
Puedes colaborar con nosotros de la manera que tú elijas, tú eres la fuerza que necesitamos.
Si lo que quieres es colaborar con nosotros a través de tu voluntariado, por favor cumplimenta el formulario y nos pondremos en contacto lo antes posible, tú eres la fuerza que necesitamos.

| Cookie | Duración | Descripción |
|---|---|---|
| __cf_bm | 1 hour | This cookie, set by Cloudflare, is used to support Cloudflare Bot Management. |
| _cfuvid | session | Calendly sets this cookie to track users across sessions to optimize user experience by maintaining session consistency and providing personalized services |
| cookielawinfo-checkbox-advertisement | 1 year | Set by the GDPR Cookie Consent plugin, this cookie records the user consent for the cookies in the "Advertisement" category. |
| cookielawinfo-checkbox-analytics | 11 months | This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Analytics". |
| cookielawinfo-checkbox-functional | 11 months | The cookie is set by GDPR cookie consent to record the user consent for the cookies in the category "Functional". |
| cookielawinfo-checkbox-necessary | 11 months | This cookie is set by GDPR Cookie Consent plugin. The cookies is used to store the user consent for the cookies in the category "Necessary". |
| cookielawinfo-checkbox-others | 11 months | This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Other. |
| cookielawinfo-checkbox-performance | 11 months | This cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Performance". |
| CookieLawInfoConsent | 1 year | CookieYes sets this cookie to record the default button state of the corresponding category and the status of CCPA. It works only in coordination with the primary cookie. |
| PHPSESSID | session | This cookie is native to PHP applications. The cookie stores and identifies a user's unique session ID to manage user sessions on the website. The cookie is a session cookie and will be deleted when all the browser windows are closed. |
| rc::a | never | This cookie is set by the Google recaptcha service to identify bots to protect the website against malicious spam attacks. |
| rc::c | session | This cookie is set by the Google recaptcha service to identify bots to protect the website against malicious spam attacks. |
| viewed_cookie_policy | 11 months | The cookie is set by the GDPR Cookie Consent plugin and is used to store whether or not user has consented to the use of cookies. It does not store any personal data. |
| XSRF-TOKEN | 2 hours | This cookie enhances visitor browsing security by preventing cross-site request forgery. |
| Cookie | Duración | Descripción |
|---|---|---|
| yt-remote-cast-available | session | The yt-remote-cast-available cookie is used to store the user's preferences regarding whether casting is available on their YouTube video player. |
| yt-remote-cast-installed | session | The yt-remote-cast-installed cookie is used to store the user's video player preferences using embedded YouTube video. |
| yt-remote-connected-devices | never | YouTube sets this cookie to store the user's video preferences using embedded YouTube videos. |
| yt-remote-device-id | never | YouTube sets this cookie to store the user's video preferences using embedded YouTube videos. |
| yt-remote-fast-check-period | session | The yt-remote-fast-check-period cookie is used by YouTube to store the user's video player preferences for embedded YouTube videos. |
| yt-remote-session-app | session | The yt-remote-session-app cookie is used by YouTube to store user preferences and information about the interface of the embedded YouTube video player. |
| yt-remote-session-name | session | The yt-remote-session-name cookie is used by YouTube to store the user's video player preferences using embedded YouTube video. |
| ytidb::LAST_RESULT_ENTRY_KEY | never | The cookie ytidb::LAST_RESULT_ENTRY_KEY is used by YouTube to store the last search result entry that was clicked by the user. This information is used to improve the user experience by providing more relevant search results in the future. |
| Cookie | Duración | Descripción |
|---|---|---|
| _gat | 1 minute | Google Universal Analytics sets this cookie to restrain request rate and thus limit data collection on high-traffic sites. |
| Cookie | Duración | Descripción |
|---|---|---|
| _ga | 1 year 1 month 4 days | Google Analytics sets this cookie to calculate visitor, session and campaign data and track site usage for the site's analytics report. The cookie stores information anonymously and assigns a randomly generated number to recognise unique visitors. |
| _ga_* | 1 year 1 month 4 days | Google Analytics sets this cookie to store and count page views. |
| _gat_gtag_UA_1975075_20 | 1 minute | Google Analytics sets this cookie for tracking data. |
| _gid | 1 day | Google Analytics sets this cookie to store information on how visitors use a website while also creating an analytics report of the website's performance. Some of the collected data includes the number of visitors, their source, and the pages they visit anonymously. |
| sbjs_current | session | Sourcebuster sets this cookie to identify the source of a visit and stores user action information in cookies. This analytical and behavioural cookie is used to enhance the visitor experience on the website. |
| sbjs_current_add | session | Sourcebuster sets this cookie to identify the source of a visit and stores user action information in cookies. This analytical and behavioural cookie is used to enhance the visitor experience on the website. |
| sbjs_first | session | Sourcebuster sets this cookie to identify the source of a visit and stores user action information in cookies. This analytical and behavioural cookie is used to enhance the visitor experience on the website. |
| sbjs_first_add | session | Sourcebuster sets this cookie to identify the source of a visit and stores user action information in cookies. This analytical and behavioural cookie is used to enhance the visitor experience on the website. |
| sbjs_migrations | session | Sourcebuster sets this cookie to identify the source of a visit and stores user action information in cookies. This analytical and behavioural cookie is used to enhance the visitor experience on the website. |
| sbjs_session | 1 hour | Sourcebuster sets this cookie to identify the source of a visit and stores user action information in cookies. This analytical and behavioural cookie is used to enhance the visitor experience on the website. |
| sbjs_udata | session | Sourcebuster sets this cookie to identify the source of a visit and stores user action information in cookies. This analytical and behavioural cookie is used to enhance the visitor experience on the website. |
| Cookie | Duración | Descripción |
|---|---|---|
| OAGEO | session | OpenX sets this cookie to avoid the repeated display of the same ad. |
| OAID | 1 year | Cookie set to record whether the user has opted out of the collection of information by the AdsWizz Service Cookies. |
| VISITOR_INFO1_LIVE | 6 months | YouTube sets this cookie to measure bandwidth, determining whether the user gets the new or old player interface. |
| VISITOR_PRIVACY_METADATA | 6 months | YouTube sets this cookie to store the user's cookie consent state for the current domain. |
| YSC | session | Youtube sets this cookie to track the views of embedded videos on Youtube pages. |
| yt.innertube::nextId | never | YouTube sets this cookie to register a unique ID to store data on what videos from YouTube the user has seen. |
| yt.innertube::requests | never | YouTube sets this cookie to register a unique ID to store data on what videos from YouTube the user has seen. |
| Cookie | Duración | Descripción |
|---|---|---|
| __Secure-ROLLOUT_TOKEN | 6 months | Description is currently not available. |
| captcha-cookie | 1 day | Description is currently not available. |
| miaportacion_session | 2 hours | Description is currently not available. |
Torneo de Golf Benéfico Villa de San Javier recauda 3.919,50€ para la investigación
/en EventosEl pasado 29 y 30 de agosto de 2025 se celebró en la Villa de San Javier (Murcia) el VIII […]
NUEVA NOTICIA. Isabel Gemio se pone al frente de “El último tren” en RNE
/en EventosDesde este 1 de septiembre, la periodista y comunicadora Isabel Gemio, fundadora y presidenta de la Fundación Isabel Gemio, regresa […]
NUEVA PUBLICACIÓN EN ANNALS OF CLINICAL AND TRANSLATIONAL NEUROLOGY DE UN GRUPO DE INVESTIGACIÓN COFINANCIADO POR LA FUNDACIÓN ISABEL GEMIO: Expansiones repetidas en PLIN4 causan miopatía vacuolar autosómica dominante con rasgos sarcolemales
/en Científicas, Sin categorizarMadrid, 24 de julio de 2025 Un equipo de investigadores entre los que destaca el Dr. Eduard Gallardo de Laboratorio […]
Reunión de lanzamiento del proyecto Erasmus+ La FP por la inclusión: la inclusión de enfermedades raras en la educación profesional y de los estudiantes de FP en el trabajo con personas con enfermedades raras
/en Actual, Noticias, Proyectos EuropeosEl lunes 14 de julio se celebró la reunión de lanzamiento del Erasmus+ FP por la inclusión cuyos objetivos son: […]
VIII Torneo de Golf en Villa de San Javier (Murcia) para la investigación de enfermedades raras y distrofias musculares
/en EventosEl próximo viernes 29 y el sábado 30 de agosto de 2025, Roda Golf organiza el VIII Torneo de Golf […]
NUEVA NOTICIA DE EL PAÍS. ‘El País’ dedica un especial al sector fundacional
/en Científicas, Sin categorizarEl diario El País ha lanzado un especial centrado en el sector fundacional, abordando aspectos como el apoyo social, la […]
Fundación Isabel Gemio visita la Fundación Lesionado Medular
/en EventosFundación Isabel Gemio tuvo la oportunidad de participar en un nuevo Encuentro de la Discapacidad organizado por la Fundación Lesionado […]
Petición para incluir todas las enfermedades neuromusculares y neurodegenerativas en la Ley ELA
/en Actual, Noticias¡Por una Ley ELA realmente inclusiva! Desde la Fundación Isabel Gemio pedimos al Ministerio de Sanidad que el futuro Real […]
La Fundación Isabel Gemio celebra un evento multiplicador del Programa Erasmus+ KITS EDUCATIVOS EN EL ÁMBITO DE LAS ENFERMEDADES RARAS en la sala de Representación de la Comisión Europea en España
/en Actual, Noticias, Proyectos EuropeosMadrid, 18 de junio de 2025. La Fundación Isabel Gemio ha celebrado el evento multiplicador del proyecto Erasmus+ KITS DE AYUDA […]
NUEVA NOTICIA DE ITALFARMACO. La Comisión Europea aprueba Duvyzat® para el tratamiento de la distrofia muscular de Duchenne
/en Científicas, Sin categorizarEl pasado viernes 6 de junio la Comisión Europea (CE) otorgó la autorización condicional de comercialización de Duvyzat® (givinostat), un […]