New online meeting of the Erasmus+ QUALITY YOUTH MENTORING FOR INCLUSION

On Thursday, June 13th, the partnership of the Erasmus+ QUALITY YOUTH MENTORING FOR INCLSUION, co-funded by the European Union, held a new online meeting to analyze the development of the main results, to organize the pilot test and to agree on a date for the 3rd transnational meeting of the project in Nicosia (Cyprus).

Entities with an inclusion and accessible environment will be able to implement the mentoring process in their work methodology, something that can bring numerous benefits. The people will be more satisfied, as it improves those qualities in them that are most valuable for professionals.  Some of the benefits for the implementation of the program are:

  • Strengthening leadership, in line with strategic objectives
  • Promotion of an action policy focused on achieving objectives
  • Identifying, retaining and directing talent towards specific projects
  • Increasing loyalty and enhancing internal communication
  • Facilitating the transmission of the institution’s values and organizational culture.

The partnership will start the pilot test of the initiative in the following months aiming to test the results and enhance the outcomes. For that matter, we will conduct 6 different mentoring relationships between big brother and younger brothers. We are looking for apprentices willing to accelerate their  individual, educational and professional development; and mentors willing to encourage social inclusion, solidarity and tolerance.

Do you want to join us? Contact us.

The partnership of the Erasmus+ KITS EDUCATIVOS EN EL ÁMBITO DE LAS ENFERMEDADES RARAS meets in Madrid

The partnership of the Erasmus+ project EDUCATIONAL AID KITS IN THE FIELD OF RARE DISEASES, co-funded by the European Union, met last Friday, May 31, at the headquarters of Fundación Isabel Gemio in Madrid.

According to the study ‘Rare Disease Education in Europe: Time to Act’ carried out by Orphanet Journal of Rare Diseases and published in 2022, healthcare workforce (HWF) lacks even the basic knowledge and awareness of Rare Diseases (RD). In several studies, an objective evaluation of knowledge on RD among physicians (general practitioners and specialists), pharmacists, nurses and students of various specialties was performed by asking questions about RD definition, epidemiology, examples of RD and informational resources for RD. The vast majority of general practitioners (GPs) and students self-rated poorly their knowledge on RD and preparedness to provide care for RD, while self-ratings of pediatricians and specialists were higher.

Therefore, the Erasmus+ project partnership will develop a set of intellectual outputs to improve the training of teachers and students in the Vocational Education Training (VET) fields of Health, Social Integration, and Socio-Sports Education. At the same time, the initiative aims to enhance the inclusion and accessibility of people affected by rare diseases in this education level. A study conducted in Spain for the 2019/2020 academic year indicates that students with disabilities represent only 2.7% of those enrolled at VET. During the meeting, the partners analyzed the situation in the various countries involved in the initiative (Italy, Portugal, France, and Croatia) and agreed on the next stages of the project.

We would like to thank the company SECOE because they have decided to join and collaborate with Fundación Isabel Gemio once again providing in solidarity the catering that the partnership enjoyed at the end of the meeting. Thanks to SECOE’s team, with special mention to Raúl, Carlos, and Julián, for their professionalism and kindness at all times.

After lunch, the project’s partnership went to the VET centre Colegio Internacional G. Nicoli in Madrid to gain first-hand insight into the perspective of teachers from the Vocational Education Training programs for Nursing Assistant Technician, Natural Environment and Outside Activities Guide and Sports Education and Social Animation Technician. This school advocates for the rights of people with disabilities for years. and its curriculum includes sessions focused on the research and understanding of Rare Diseases.

We would like to thank the Colegio Internacional G. Nicoli for their collaboration and, special thanks to Itziar, Ruth, and Paloma, as their testimony has allowed us to identify the needs and main challenges that we must address within this project.

The partnership (Universidade de Évora, Rare Diseases Croatia, CESIE ETS, Federación ASEM, CMT-France and Fundación Isabel Gemio) will continue working in the following months with the aim of improving the inclusion of people with rare diseases in VET and raising social awareness about these pathologies.

New online meeting of the Erasmus+ QUALITY YOUTH MENTORING FOR INCLUSION

The partnership of the Erasmus+ QUALITY YOUTH MENTORING FOR INCLUSION met on Tuesday, April 30th, to analyze the progress of the initiative, that will develop a mentoring process for young people affected by Rare Diseases (RD). Find below the most important conclusions of the meeting:

  • The methodological guide will provide training for mentors and mentees that will improve their confidence and self-development.
  • The mentoring process will allow the participants to identify future professional development opportunities and to learn techniques to overcome daily challenges.
  • More than 60 young patients affected by RD will benefit directly from the initiative. The pilot tests will be conducted during the summertime to increase the participation of young people.

Do you want to join us? Contact us and we will guide through all the process. Follow us on social media for more information.

Kick-off meeting of the Erasmus+ EDUCATIONAL AID KITS IN THE FIELD OF RARE DISEASES

On Tuesday, April 23rd, we held the kick-off meeting of the Erasmus+ EDUCATIONAL AID KITS IN THE FIELD OF RARE DISEASES (RD). The objectives of this new project are:

  • transform vocational training into a more accessible and inclusive education for people with RD that encourages them to carry out their studies in equity.
  • train future professionals without RD in the care of this target group, avoiding risks and negligence due to lack of knowledge of RD and opening new paths to employability.
  • establish an innovative working strategy between RD experts and VET teachers that allows them to include content related to RD and inclusive methods in their classrooms.

In this new initiative, co-funded by the European Union, and coordinated by Fundación Isabel Gemio, the partnership organizations are Universidade de Évora (Portugal), CESIE ETS (Italy), CMT-France (France) and Federación Española de Enfermedades Neuromusculares (Spain). The partnership will collaborare in the development of the following results:

  • METHODOLOGICAL GUIDE. An extensive guide that will establish mechanisms to promote the creation of more inclusive VET classrooms with RD students, as well as to establish methods to deal with training contents on RD compatible with their teaching curricula and their didactic programming.
  • EDUCATIONAL KITS. Sets of educational materials that allow teachers to use them in their classrooms to enhance the training of mid-level vocational students from the professional families of health and socio-cultural and community services.
  • VIRTUAL COURSE.  For the training of vet teachers in the use of resources and methodology through adapted digital tools.
  • ADVICE AND GUIDANCE SERVICE. A communication tool that will put teachers or professionals with intermediate vocational training studies in contact with experts from various fields in RD so that they can help them with the mechanisms to properly care for patients with RD.

The partnership of the project will meet in Madrid next month to discuss and plan the following steps of the project.

Fundación Isabel Gemio holds new multiplier events of the Erasmus+ THE VALUE OF FACING SCHOOL

In recent days, Fundación Isabel Gemio has held new multiplier events for the initiative THE VALUE OF FACING SCHOOL, co-funded by the European Union:

  • Last Monday, February 26th, we celebrated the XVI Anniversary at the Real Casino de Madrid. During the event, attended by nearly 300 personalities from the business, culture, society, sports, and communication sectors, we presented the objectives and results of the project.
  • Two days later, on Wednesday, February 28th, the team moved to the Colegio Internacional G. Nicoli to present the benefits of the initiative and the need to improve inclusion and accessibility in the educational environment to around 50 students of the Nursing Assistant Intermediate Degree.

Discover all the news about the Project on the website and social media.

Roma receives the second transnational meeting of the Erasmus+ QUALITY YOUTH MENTORING FOR INCLUSION

On February 16th, 2024, the partners of the Erasmus+ project QUALITY YOUTH MENTORING FOR INCLUSION met in Rome to hold the second transnational meeting of the project. The main objective of the meeting was to review the progress of the intellectual outputs and to develop the dissemination plan.

The partners have identified that the mentoring process for people affected by rare diseases will have three main beneficiaries:

  • The affected people, who will develop their self-determination skills as well as their social and professional capacities.
  • The institutions implementing the project, which will be able to create an inclusive working environment and to connect with individuals of unique skills, perspectives, and experiences.
  • Parents/caregivers will benefit from the increased autonomy of the youth and a reduction in stress due to additional support from the mentor.

The project will also develop a training process for mentors that will provide them with tools and resources to guide the younger brother and help them achieve the goals and objectives established at the beginning of the project. Over the next few months, we will gather testimonials from people affected and we will carry out dissemination activities to raise awareness among people and the beneficiaries can proceed with the registration on the online platform.

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The partnership of the Erasmus+ QUALITY YOUTH MENTORING FOR INCLUSION holds a new online meeting

The partners of the Erasmus+ QUALITY YOUTH MENTORING FOR INCLUSION met this Tuesday, February 6th 2024, to review the progress of the project and plan the next activities.

The project is going to create a digital platform that will allow young people with rare diseases (RD) to request an older brother or apply to become one. This platform will connect the young person with their older or younger brother and with the rare disease entity in their country.

What qualities define a good mentor?

  • Be supportive and positive.
  • Listen carefully and show interest in the mentee’s experiences and needs.
  • Be honest and authentic.
  • Create a safe space for sharing thoughts, feelings, and making mistakes.
  • Encourage the mentee to explore their strengths and abilities.

If you want to be part of the Project, please contact us, and we will provide you with all the information.The Erasmus+ project QUALITY YOUTH MENTORING FOR INCLUSION is cofounded by the European Union.

Partners:

  • Federación Española de Enfermedades Neuromusculares (ASEM)
  • Parent Project aps
  • Rare Diseases Croatia
  • Cyprus Alliance for Rare Disorders

Fundación Isabel Gemio holds a new multiplier event in the Representation of the European Commission in Spain’s venue to present the Erasmus+ project THE VALUE OF FACING SCHOOL

Madrid,  January 30th 2024. Fundación Isabel Gemio has organized a new multiplier event for the Erasmus+ project THE VALUE OF FACING SCHOOL, in Madrid. The Director of the Representation of the European Commission (EC) in Spain, Mr. Lucas Gonzalez Ojeda, welcomed the attendees and outlined the objectives set by the European Union in the field of education.

During the first part, the team from Fundación Isabel Gemio highlighted the social challenge posed by rare diseases, with over 30 million affected individuals in the European Union. María Romo, Director of Fundación Isabel Gemio, emphasized the need to collaborate and create synergies among all social actors to address and find solutions to these pathologies.

Behind the numbers and statistics, there are whole individuals and families who must overcome numerous difficulties in their daily lives. The Erasmus+ project THE VALUE OF FACING SCHOOL is born with the aim of helping these families in the school enrolment process, which sometimes becomes a race full of obstacles. The methodological guide and educational resources are already available on the project’s website. We invite you to visit the page and discover the techniques and activities designed for educational professionals, students, and family members, with the aim of improving inclusion and accessibility in classrooms.


In the second part, we had the testimonies of Begoña Martín, director of Federación ASEM, and Carolina Juzdado, a student of three university degrees and affected by Friedreich’s Ataxia. Begoña explained the challenges she had to overcome during her son Ismael’s schooling process, affected by Duchenne muscular dystrophy, and highlighted that trust and respect are fundamental values in the relationship with educational institutions. On the other hand, Carolina spoke about the physical barriers she encountered in classrooms and encouraged everyone to work towards inclusion. The event ended with a round of questions addressing new avenues for collaboration and joint work in the educational context.

We want to thank the Representation of the European Commission in Spain and Mr. Lucas Gonzalez Ojeda for their collaboration and for providing us with the space to hold the event. To Begoña Martín and Carolina Juzdado for sharing their testimonies and supporting our project. Likewise, we want to thank all the attendees for joining us and for their interest in our initiative. Thank you very much!

The Erasmus+ project THE VALUE OF FACING SCHOOL is co-funded by the European Union and has the collaboration of:

  • Federación ASEM
  • Universidade de Évora
  • French Fondation Maladies Rares
  • UNIAMO
  • Parent Project APS
  • CEIP Clara Campoamor de Málaga