{"id":6255,"date":"2016-09-22T12:28:32","date_gmt":"2016-09-22T11:28:32","guid":{"rendered":"http:\/\/www.fundacionisabelgemio.com\/fr\/?page_id=6255"},"modified":"2019-03-04T13:22:20","modified_gmt":"2019-03-04T12:22:20","slug":"parents-actifs","status":"publish","type":"page","link":"https:\/\/www.fundacionisabelgemio.com\/fr\/parents-actifs","title":{"rendered":"Familles actives"},"content":{"rendered":"\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_section-a6b2efc9f149aeff2ed710593ba7862f\">\n.avia-section.av-av_section-a6b2efc9f149aeff2ed710593ba7862f{\nbackground-repeat:no-repeat;\nbackground-image:url(https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2015\/05\/Dollarphotoclub_69032612-1500x430.jpg);\nbackground-position:0% 0%;\nbackground-attachment:scroll;\n}\n.avia-section.av-av_section-a6b2efc9f149aeff2ed710593ba7862f .av-section-color-overlay{\nopacity:0.7;\nbackground-color:#2e2e2e;\n}\n<\/style>\n<div id='av_section_1'  class='avia-section av-av_section-a6b2efc9f149aeff2ed710593ba7862f main_color avia-section-default avia-no-shadow  avia-builder-el-0  el_before_av_textblock  avia-builder-el-first  avia-bg-style-scroll av-section-color-overlay-active container_wrap sidebar_right'  data-section-bg-repeat='no-repeat'><div class=\"av-section-color-overlay-wrap\"><div class=\"av-section-color-overlay\"><\/div><div class='container av-section-cont-open' ><main  role=\"main\" itemprop=\"mainContentOfPage\"  class='template-page content  av-content-small alpha units'><div class='post-entry post-entry-type-page post-entry-6255'><div class='entry-content-wrapper clearfix'>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-jsuayz6k-7f1191dcd951a079ea7fedf274a26161\">\n#top .av-special-heading.av-jsuayz6k-7f1191dcd951a079ea7fedf274a26161{\npadding-bottom:10px;\ncolor:#ffffff;\n}\nbody .av-special-heading.av-jsuayz6k-7f1191dcd951a079ea7fedf274a26161 .av-special-heading-tag .heading-char{\nfont-size:25px;\n}\n.av-special-heading.av-jsuayz6k-7f1191dcd951a079ea7fedf274a26161 .special-heading-inner-border{\nborder-color:#ffffff;\n}\n.av-special-heading.av-jsuayz6k-7f1191dcd951a079ea7fedf274a26161 .av-subheading{\nfont-size:15px;\n}\n<\/style>\n<div  class='av-special-heading av-jsuayz6k-7f1191dcd951a079ea7fedf274a26161 av-special-heading-h1 custom-color-heading blockquote modern-quote modern-centered  avia-builder-el-1  avia-builder-el-no-sibling '><h1 class='av-special-heading-tag'  itemprop=\"headline\"  >Familles actives<\/h1><div class=\"special-heading-border\"><div class=\"special-heading-inner-border\"><\/div><\/div><\/div>\n<\/div><\/div><\/main><!-- close content main element --><\/div><\/div><\/div><div id='after_section_1'  class='main_color av_default_container_wrap container_wrap sidebar_right'  ><div class='container av-section-cont-open' ><div class='template-page content  av-content-small alpha units'><div class='post-entry post-entry-type-page post-entry-6255'><div class='entry-content-wrapper clearfix'><section  class='av_textblock_section av-av_textblock-0366cc7376be6c9e82a3e9cc8987b64f'  itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"font-weight: 400;\">Ici nous allons voir des exemples de familles et parents impliqu\u00e9s dans la lutte pour l&rsquo;\u00e9radication de maladies rares \u00a0\u00e0 travers \u00a0la recherche, avec leur effort, courage et volont\u00e9. Ainsi gr\u00e2ce \u00e0 eux, nous obtiendrons un jour la gu\u00e9rison \u00a0de ces terribles pathologies et donc l\u2019am\u00e9lioration de la qualit\u00e9 de vie des patients et de leurs familles.<\/span><\/p>\n<\/div><\/section><\/p>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_hr-a6de236e6c183bbbd700292deacd2b52\">\n#top .hr.hr-invisible.av-av_hr-a6de236e6c183bbbd700292deacd2b52{\nheight:20px;\n}\n<\/style>\n<div  class='hr av-av_hr-a6de236e6c183bbbd700292deacd2b52 hr-invisible  avia-builder-el-3  el_after_av_textblock  el_before_av_heading '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_heading-30139a30da930699d12ae5208da0cdaf\">\n#top .av-special-heading.av-av_heading-30139a30da930699d12ae5208da0cdaf{\npadding-bottom:20px;\n}\nbody .av-special-heading.av-av_heading-30139a30da930699d12ae5208da0cdaf .av-special-heading-tag .heading-char{\nfont-size:25px;\n}\n.av-special-heading.av-av_heading-30139a30da930699d12ae5208da0cdaf .av-subheading{\nfont-size:15px;\n}\n<\/style>\n<div  class='av-special-heading av-av_heading-30139a30da930699d12ae5208da0cdaf av-special-heading-h3 blockquote modern-quote  avia-builder-el-4  el_after_av_hr  el_before_av_two_fifth '><h3 class='av-special-heading-tag'  itemprop=\"headline\"  >Mar\u00eda Encarnaci\u00f3n L\u00f3pez \u00c1lvarez<\/h3><div class='av-subheading av-subheading_below'><p>Cuero Candamo &#8211; Asturias<\/p>\n<\/div><div class=\"special-heading-border\"><div class=\"special-heading-inner-border\"><\/div><\/div><\/div>\n<div class='flex_column av-av_two_fifth-2a9015ff38129c418a3f2eafba3e9512 av_two_fifth  avia-builder-el-5  el_after_av_heading  el_before_av_three_fifth  first flex_column_div '     ><div  class='avia-video av-av_video-fb90f8f25a95a0e83abd710a53b4f1a9 avia-video-16-9 av-no-preview-image avia-video-load-always av-lazyload-immediate av-lazyload-video-embed'  itemprop=\"video\" itemtype=\"https:\/\/schema.org\/VideoObject\"  data-original_url='https:\/\/www.youtube.com\/watch?v=E-NqTOr--18'><script type='text\/html' class='av-video-tmpl'><div class='avia-iframe-wrap'><iframe loading=\"lazy\" width=\"1500\" height=\"844\" src=\"https:\/\/www.youtube.com\/embed\/E-NqTOr--18?wmode=transparent&amp;rel=0&amp;feature=oembed&autoplay=0&loop=0&controls=1&mute=0\" frameborder=\"0\" allowfullscreen><\/iframe><\/div><\/script><div class='av-click-to-play-overlay'><div class=\"avia_playpause_icon\"><\/div><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_three_fifth-9c1d454dc06f7247226bc4e8f931daae\">\n.flex_column.av-av_three_fifth-9c1d454dc06f7247226bc4e8f931daae{\n-webkit-border-radius:0px 0px 0px 0px;\n-moz-border-radius:0px 0px 0px 0px;\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div class='flex_column av-av_three_fifth-9c1d454dc06f7247226bc4e8f931daae av_three_fifth  avia-builder-el-7  el_after_av_two_fifth  el_before_av_hr  flex_column_div av-zero-column-padding '     ><section  class='av_textblock_section av-av_textblock-0366cc7376be6c9e82a3e9cc8987b64f'  itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"font-weight: 400;\">Encarnita<\/span> <span style=\"font-weight: 400;\">est une m\u00e8re de famille courageuse avec un fils atteint d\u2019une dystrophie musculaire, qui ne se repose pas \u00e0 l&rsquo;heure de donner de l&rsquo;appui au financement de projets de recherche scientifique que nous d\u00e9veloppons \u00e0 travers la Fondation avec son activit\u00e9 commerciale intense et la diffusion des maladies minoritaires. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">Les petits march\u00e9s auxquels elle a assist\u00e9 pour montrer et offrir des produits \u00e9labor\u00e9s, par elle-m\u00eame, afin de collaborer activement aux fins de notre Fondation sont tr\u00e8s diff\u00e9rents. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">Savons artisanaux, bracelets de crochet, de poignets, cr\u00e8ches et sucreries asturiennes sont certains de ces produits solidaires que nous pouvons retrouver<\/span><span style=\"font-weight: 400;\">.<\/span><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_hr-a6de236e6c183bbbd700292deacd2b52\">\n#top .hr.hr-invisible.av-av_hr-a6de236e6c183bbbd700292deacd2b52{\nheight:20px;\n}\n<\/style>\n<div  class='hr av-av_hr-a6de236e6c183bbbd700292deacd2b52 hr-invisible  avia-builder-el-9  el_after_av_three_fifth  el_before_av_heading '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_heading-d6b670e915bbe84ab167490bda6adab6\">\n#top .av-special-heading.av-av_heading-d6b670e915bbe84ab167490bda6adab6{\npadding-bottom:20px;\n}\nbody .av-special-heading.av-av_heading-d6b670e915bbe84ab167490bda6adab6 .av-special-heading-tag .heading-char{\nfont-size:25px;\n}\n.av-special-heading.av-av_heading-d6b670e915bbe84ab167490bda6adab6 .av-subheading{\nfont-size:15px;\n}\n<\/style>\n<div  class='av-special-heading av-av_heading-d6b670e915bbe84ab167490bda6adab6 av-special-heading-h3 blockquote modern-quote  avia-builder-el-10  el_after_av_hr  el_before_av_two_fifth '><h3 class='av-special-heading-tag'  itemprop=\"headline\"  >Jose Mar\u00eda Carrasco<\/h3><div class='av-subheading av-subheading_below'><p>San Pedro del Pinatar &#8211; Murcia<\/p>\n<\/div><div class=\"special-heading-border\"><div class=\"special-heading-inner-border\"><\/div><\/div><\/div>\n<div class='flex_column av-av_two_fifth-2a9015ff38129c418a3f2eafba3e9512 av_two_fifth  avia-builder-el-11  el_after_av_heading  el_before_av_three_fifth  first flex_column_div '     ><div  class='avia-video av-av_video-9fdf82e948d5d128b93739bbf9981e55 avia-video-16-9 av-no-preview-image avia-video-load-always av-lazyload-immediate av-lazyload-video-embed'  itemprop=\"video\" itemtype=\"https:\/\/schema.org\/VideoObject\"  data-original_url='https:\/\/www.youtube.com\/watch?v=fJEjkxUwen4'><script type='text\/html' class='av-video-tmpl'><div class='avia-iframe-wrap'><iframe loading=\"lazy\" width=\"1500\" height=\"844\" src=\"https:\/\/www.youtube.com\/embed\/fJEjkxUwen4?wmode=transparent&amp;rel=0&amp;feature=oembed&autoplay=0&loop=0&controls=1&mute=0\" frameborder=\"0\" allowfullscreen><\/iframe><\/div><\/script><div class='av-click-to-play-overlay'><div class=\"avia_playpause_icon\"><\/div><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_three_fifth-9c1d454dc06f7247226bc4e8f931daae\">\n.flex_column.av-av_three_fifth-9c1d454dc06f7247226bc4e8f931daae{\n-webkit-border-radius:0px 0px 0px 0px;\n-moz-border-radius:0px 0px 0px 0px;\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div class='flex_column av-av_three_fifth-9c1d454dc06f7247226bc4e8f931daae av_three_fifth  avia-builder-el-13  el_after_av_two_fifth  el_before_av_hr  flex_column_div av-zero-column-padding '     ><section  class='av_textblock_section av-av_textblock-0366cc7376be6c9e82a3e9cc8987b64f'  itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"font-weight: 400;\">La famille de \u201cGuillen\u201d, un adolescent de San Pedro del Pinatar victime d\u2019une dystrophie musculaire, a lanc\u00e9 un projet solidaire national, au travers d&rsquo;un SMS et d\u2019un gala-d\u00eener qui organise chaque ann\u00e9e \u00e0 San Pedro del Pinatar (Murcie). Maintenant ils entreprennent de nouveaux projets comme des courses solidaires, et de nouvelles id\u00e9es pour contribuer \u00e0 la recherche concernant les maladies minoritaires.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Ce geste effectu\u00e9 \u00a0chaque matin, celui de rechercher 1.20\u20ac dans sa poche pour payer son caf\u00e9, peut sauver des vies. En effet, la campagne \u00ab\u00a0Un caf\u00e9 pour Guillen\u00a0\u00bb encourage \u00e0 faire don du montant symbolique d&rsquo;un caf\u00e9 (1,20 euros) \u00e0 travers d&rsquo;un court message [SMS] \u00e0 l\u2019aide de son mobile, en envoyant le mot GUILLEN au 28014. Les fonds recueillis sont destin\u00e9s aux fins de la Fondation Isabel Gemio, soit le financement de la recherche des maladies les moins fr\u00e9quentes.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">La famille de Guillen a port\u00e9e ce projet solidaire au niveau national pour concentrer ses efforts et fournir plus de moyens \u00e0 la recherche scientifique mais aussi pour promouvoir le d\u00e9veloppement pharmaceutique pour les maladies \u00a0peu fr\u00e9quentes qui \u00a0comptent \u00a0trois millions de patients en Espagne.<\/span><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_hr-a6de236e6c183bbbd700292deacd2b52\">\n#top .hr.hr-invisible.av-av_hr-a6de236e6c183bbbd700292deacd2b52{\nheight:20px;\n}\n<\/style>\n<div  class='hr av-av_hr-a6de236e6c183bbbd700292deacd2b52 hr-invisible  avia-builder-el-15  el_after_av_three_fifth  el_before_av_heading '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_heading-c717a7901c7c714a271fc5aeaff4ab5e\">\n#top .av-special-heading.av-av_heading-c717a7901c7c714a271fc5aeaff4ab5e{\npadding-bottom:20px;\n}\nbody .av-special-heading.av-av_heading-c717a7901c7c714a271fc5aeaff4ab5e .av-special-heading-tag .heading-char{\nfont-size:25px;\n}\n.av-special-heading.av-av_heading-c717a7901c7c714a271fc5aeaff4ab5e .av-subheading{\nfont-size:15px;\n}\n<\/style>\n<div  class='av-special-heading av-av_heading-c717a7901c7c714a271fc5aeaff4ab5e av-special-heading-h3 blockquote modern-quote  avia-builder-el-16  el_after_av_hr  el_before_av_two_fifth '><h3 class='av-special-heading-tag'  itemprop=\"headline\"  >R\u00e9seau de M\u00e8res et P\u00e8res de Cordoba<\/h3><div class='av-subheading av-subheading_below'><p>Famille Isabel Roig y Jes\u00fas Pineda, Volontaire Rafi Garc\u00eda, Volontaire Pilar Mart\u00ednez, Abuela Mar\u00eda Rubiales, Volontaire Araceli Bergillos, Volontaire M\u00aa Jos\u00e9 Garc\u00eda, Volontaires Charo Ortiz y Paco G\u00f3mez, Famille Concha Pedraza, Famille Antonia y Santiago Vallejo\u2026 et beaucoup plus !<\/p>\n<\/div><div class=\"special-heading-border\"><div class=\"special-heading-inner-border\"><\/div><\/div><\/div>\n<div class='flex_column av-av_two_fifth-2a9015ff38129c418a3f2eafba3e9512 av_two_fifth  avia-builder-el-17  el_after_av_heading  el_before_av_three_fifth  first flex_column_div '     ><p><div  class='avia-video av-av_video-312a2f321332839e270f15abc318fa6f avia-video-16-9 av-no-preview-image avia-video-load-always av-lazyload-immediate av-lazyload-video-embed'  itemprop=\"video\" itemtype=\"https:\/\/schema.org\/VideoObject\"  data-original_url='https:\/\/vimeo.com\/83194877'><script type='text\/html' class='av-video-tmpl'><div class='avia-iframe-wrap'><iframe loading=\"lazy\" src=\"https:\/\/player.vimeo.com\/video\/83194877?autoplay=0&loop=0&controls=1&muted=0\" width=\"1280\" height=\"720\" frameborder=\"0\" title=\"Gran abrazo solidario a la Mezquita-Catedral de C&oacute;rdoba\" webkitallowfullscreen mozallowfullscreen allowfullscreen><\/iframe><\/div><\/script><div class='av-click-to-play-overlay'><div class=\"avia_playpause_icon\"><\/div><\/div><\/div><br \/>\n<section  class='av_textblock_section av-av_textblock-0366cc7376be6c9e82a3e9cc8987b64f'  itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p>Produit par Antonio Leal<\/p>\n<\/div><\/section><\/p><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_three_fifth-9c1d454dc06f7247226bc4e8f931daae\">\n.flex_column.av-av_three_fifth-9c1d454dc06f7247226bc4e8f931daae{\n-webkit-border-radius:0px 0px 0px 0px;\n-moz-border-radius:0px 0px 0px 0px;\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div class='flex_column av-av_three_fifth-9c1d454dc06f7247226bc4e8f931daae av_three_fifth  avia-builder-el-20  el_after_av_two_fifth  el_before_av_hr  flex_column_div av-zero-column-padding '     ><section  class='av_textblock_section av-av_textblock-0366cc7376be6c9e82a3e9cc8987b64f'  itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"font-weight: 400;\">R\u00e9seau espagnol de M\u00e8res et P\u00e8res solidaires est un collectif de parents qui aident la recherche de dystrophies musculaires et autres maladies dont souffrent leurs enfants et les familles, en compl\u00e9ment de leurs nombreuses activit\u00e9s.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Son action se centralise sur la cr\u00e9ation de points d\u2019information, de diffusion et de sensibilisation aux dystrophies musculaires et autres maladies rares, <\/span><span style=\"font-weight: 400;\">en forgeant un <\/span><span style=\"font-weight: 400;\">chemin pour les actuelles recherches de ces maladies au travers de campagnes de collecte de fonds (subventions, concerts, des petits march\u00e9s solidaires, des festivals, coop\u00e9ration avec d&rsquo;autres associations, une collaboration avec des coll\u00e8ges, des produits solidaires \u2026) entre autres.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Les M\u00e8res et P\u00e8res appartenant au r\u00e9seau ont apport\u00e9, gr\u00e2ce \u00e0 \u00a0leur travail, leur volont\u00e9 infatigable et leur courage, le montant <\/span><span style=\"font-weight: 400;\">de <\/span><b>49.310 euros jusqu\u2019ici pour la recherche des maladies rares. <\/b><span style=\"font-weight: 400;\">\u00a0<\/span><span style=\"font-weight: 400;\">Mais ils continuent de croire<\/span><span style=\"font-weight: 400;\"> en la d\u00e9couverte de cette solution qui apporte de l\u2019espoir \u00e0 tant de familles. Si tu veux les aider, appelles-nous et nous te dirons comment faire. <\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Site Internet\u00a0: www.reddepadressolidarios.com<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">Adresse mail\u00a0: reddepadressolidarios@gmail.com<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">T\u00e9l\u00e9phone\u00a0: [+34] 627 80 13 21 \u2013 666 529 995<\/span><\/li>\n<\/ul>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_hr-a6de236e6c183bbbd700292deacd2b52\">\n#top .hr.hr-invisible.av-av_hr-a6de236e6c183bbbd700292deacd2b52{\nheight:20px;\n}\n<\/style>\n<div  class='hr av-av_hr-a6de236e6c183bbbd700292deacd2b52 hr-invisible  avia-builder-el-22  el_after_av_three_fifth  el_before_av_heading '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_heading-32aa57c2c93ce08e953636d30440ed23\">\n#top .av-special-heading.av-av_heading-32aa57c2c93ce08e953636d30440ed23{\npadding-bottom:20px;\n}\nbody .av-special-heading.av-av_heading-32aa57c2c93ce08e953636d30440ed23 .av-special-heading-tag .heading-char{\nfont-size:25px;\n}\n.av-special-heading.av-av_heading-32aa57c2c93ce08e953636d30440ed23 .av-subheading{\nfont-size:15px;\n}\n<\/style>\n<div  class='av-special-heading av-av_heading-32aa57c2c93ce08e953636d30440ed23 av-special-heading-h3 blockquote modern-quote  avia-builder-el-23  el_after_av_hr  el_before_av_two_fifth '><h3 class='av-special-heading-tag'  itemprop=\"headline\"  >Antonio Alfaro y Trinidad Dominguez<\/h3><div class='av-subheading av-subheading_below'><p>Cheste, Valencia<\/p>\n<\/div><div class=\"special-heading-border\"><div class=\"special-heading-inner-border\"><\/div><\/div><\/div>\n<div class='flex_column av-av_two_fifth-2a9015ff38129c418a3f2eafba3e9512 av_two_fifth  avia-builder-el-24  el_after_av_heading  el_before_av_three_fifth  first flex_column_div '     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_image-f5f6656dfcd0c97ba140318c6b210b38\">\n.avia-image-container.av-av_image-f5f6656dfcd0c97ba140318c6b210b38 img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-av_image-f5f6656dfcd0c97ba140318c6b210b38 .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-av_image-f5f6656dfcd0c97ba140318c6b210b38 av-styling-no-styling avia-align-center  avia-builder-el-25  avia-builder-el-no-sibling '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-16409 avia-img-lazy-loading-not-16409 avia_image ' src=\"https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2015\/05\/AntonioTrinidad.jpg\" alt='' title='AntonioTrinidad'  height=\"380\" width=\"640\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2015\/05\/AntonioTrinidad.jpg 640w, https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2015\/05\/AntonioTrinidad-300x178.jpg 300w, https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2015\/05\/AntonioTrinidad-450x267.jpg 450w\" sizes=\"(max-width: 640px) 100vw, 640px\" \/><\/div><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_three_fifth-9c1d454dc06f7247226bc4e8f931daae\">\n.flex_column.av-av_three_fifth-9c1d454dc06f7247226bc4e8f931daae{\n-webkit-border-radius:0px 0px 0px 0px;\n-moz-border-radius:0px 0px 0px 0px;\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div class='flex_column av-av_three_fifth-9c1d454dc06f7247226bc4e8f931daae av_three_fifth  avia-builder-el-26  el_after_av_two_fifth  el_before_av_hr  flex_column_div av-zero-column-padding '     ><section  class='av_textblock_section av-av_textblock-0366cc7376be6c9e82a3e9cc8987b64f'  itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"font-weight: 400;\">Antonio et Trini sont les parents d\u2019Adri\u00e1n, un enfant de 8 ans qui souffre de la dystrophie musculaire de Duchenne. Depuis le premier moment du diagnostic ils se sont mobilis\u00e9s pour faire face, de la meilleure mani\u00e8re, a cette maladie minoritaire et ont pris conscience que l\u2019unique solution pour arriver \u00e0 vaincre ces pathologies est la recherche.<\/span> <span style=\"font-weight: 400;\">Adri\u00e1n est trait\u00e9 par le Dr. Vilchez, qui est \u00e9galement membre de notre comit\u00e9 scientifique, \u00e0 l&rsquo;H\u00f4pital Fe de Valence. Pour cela, appuy\u00e9 par toute sa ville et son conseil municipal, il a \u00e9t\u00e9 organis\u00e9 le 7 juin 2015 un Festival B\u00e9n\u00e9fique tr\u00e8s sp\u00e9cial: \u00ab\u00a0Tous pour Adri\u00e1n \u00a0\u00bb au sein du Pavillon Omnisports de Cheste. La recette de cette soir\u00e9e, a enti\u00e8rement\u00a0\u00e9t\u00e9 destin\u00e9e \u00e0 la lutte et la recherche contre cette maladie telle que d\u2019essayer de trouver un traitement qui rendrait possible la gu\u00e9rison.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">En plus d\u2019organiser ce festival , ils ont \u00e9galement obtenu et obtiennent l&rsquo;implication de nombreuses entit\u00e9s et entreprises, de personnalit\u00e9s du monde de la culture et du sport, entre autres qui ont fait don des objets avec altruisme ou qui ont particip\u00e9 d\u2019une autre mani\u00e8re, tous avec l\u2019objectif de pouvoir obtenir plus de fonds pour la recherche de cette maladie qui b\u00e9n\u00e9ficiera non seulement \u00e0 Adri\u00e1n mais aussi \u00e0 tous les enfants et personnes qui en souffrent.<\/span><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-av_hr-a6de236e6c183bbbd700292deacd2b52\">\n#top .hr.hr-invisible.av-av_hr-a6de236e6c183bbbd700292deacd2b52{\nheight:20px;\n}\n<\/style>\n<div  class='hr av-av_hr-a6de236e6c183bbbd700292deacd2b52 hr-invisible  avia-builder-el-28  el_after_av_three_fifth  avia-builder-el-last '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"class_list":["post-6255","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.fundacionisabelgemio.com\/fr\/wp-json\/wp\/v2\/pages\/6255","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.fundacionisabelgemio.com\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.fundacionisabelgemio.com\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.fundacionisabelgemio.com\/fr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.fundacionisabelgemio.com\/fr\/wp-json\/wp\/v2\/comments?post=6255"}],"version-history":[{"count":6,"href":"https:\/\/www.fundacionisabelgemio.com\/fr\/wp-json\/wp\/v2\/pages\/6255\/revisions"}],"predecessor-version":[{"id":10917,"href":"https:\/\/www.fundacionisabelgemio.com\/fr\/wp-json\/wp\/v2\/pages\/6255\/revisions\/10917"}],"wp:attachment":[{"href":"https:\/\/www.fundacionisabelgemio.com\/fr\/wp-json\/wp\/v2\/media?parent=6255"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}