{"id":23339,"date":"2023-01-17T09:00:00","date_gmt":"2023-01-17T08:00:00","guid":{"rendered":"https:\/\/www.fundacionisabelgemio.com\/uncategorized\/jornada-para-analizar-el-documento-hoja-de-ruta-para-las-enfermedades-raras"},"modified":"2023-03-15T16:09:59","modified_gmt":"2023-03-15T15:09:59","slug":"jornada-para-analizar-el-documento-hoja-de-ruta-para-las-enfermedades-raras","status":"publish","type":"post","link":"https:\/\/www.fundacionisabelgemio.com\/en\/eventos-en\/jornada-para-analizar-el-documento-hoja-de-ruta-para-las-enfermedades-raras","title":{"rendered":"Conference to analyze the &#8216;Hoja de Ruta para las Enfermedades Raras&#8217; document and initiative"},"content":{"rendered":"<p>The Isabel Gemio Foundation has attended and collaborated in the conference held this morning to analyze the main points of interest of the document &#8216;Hoja de Ruta para las Enfermedades Raras&#8217;.<\/p><p>Published in 2021, the &#8216;Roadmap for Rare Diseases&#8217; is a consensus document that identifies the main challenges of rare diseases and offers concrete solutions to improve the quality of life of patients.<\/p><p>PRESS: <a href=\"https:\/\/www.enfermedades-raras.org\/actualidad\/noticias\/feder-comparte-avances-y-desafios-en-el-abordaje-de-las-enfermedades-poco-frecuentes-como-parte-del-proyecto-hoja-de-ruta-en-enfermedades-raras-impulsado-por-takeda\">Feder <\/a>\/ <a href=\"https:\/\/www.lavanguardia.com\/sociedad\/20230119\/8695007\/25-ensayos-clinicos-desarrollan-espana-dirigen-enfermedades-raras.html\">La Vanguardia<\/a><\/p><p><\/p>","protected":false},"excerpt":{"rendered":"<p>The Isabel Gemio Foundation has attended and collaborated in the conference held this morning to analyze the main points of [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":22743,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[714],"tags":[],"class_list":["post-23339","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-eventos-en"],"_links":{"self":[{"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/posts\/23339","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/comments?post=23339"}],"version-history":[{"count":2,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/posts\/23339\/revisions"}],"predecessor-version":[{"id":23341,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/posts\/23339\/revisions\/23341"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/media\/22743"}],"wp:attachment":[{"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/media?parent=23339"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/categories?post=23339"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/tags?post=23339"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}