{"id":16016,"date":"2023-01-10T18:19:47","date_gmt":"2023-01-10T17:19:47","guid":{"rendered":"https:\/\/www.fundacionisabelgemio.com\/uncategorized\/youth-with-courage-en-diciembre-y-enero"},"modified":"2023-01-10T18:28:05","modified_gmt":"2023-01-10T17:28:05","slug":"youth-with-courage-en-diciembre-y-enero","status":"publish","type":"post","link":"https:\/\/www.fundacionisabelgemio.com\/en\/actual-en\/youth-with-courage-en-diciembre-y-enero","title":{"rendered":"YOUTH WITH COURAGE in December-January"},"content":{"rendered":"<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<div class='avia-iframe-wrap'><iframe loading=\"lazy\" title=\"YOUTH WITH COURAGE: December-January\" width=\"1500\" height=\"844\" src=\"https:\/\/www.youtube.com\/embed\/Xeugi3brL-I?wmode=transparent&amp;rel=0&amp;feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" allowfullscreen><\/iframe><\/div>\n<\/div><\/figure><p>Get to know all the stories of December-January:<\/p><ul class=\"wp-block-list\"><li><a href=\"https:\/\/www.youtube.com\/watch?v=wanHdp0CBeg&amp;t=69s\">Lethicia <\/a>is 29 years old, and she suffers from Congenital Hypophosphatasia, an absence or low levels of serum alkaline phosphatase.<\/li><li><a href=\"https:\/\/www.youtube.com\/watch?v=pq-rd70pRxM&amp;t=1s\">Nicolas Tricot<\/a> is a researcher of the Institut national de la sant\u00e9 et de la recherche m\u00e9dicale looking for therapies for the Charcot Marie Tooth disease.<\/li><li><a href=\"https:\/\/www.youtube.com\/watch?v=nqeSWaKBORU&amp;t=3s\">Bruno <\/a>is 13 years old, and he suffers a disease called non-progressive congenital ataxia.<\/li><li><a href=\"https:\/\/www.youtube.com\/watch?v=fSNW5RZ3VEc&amp;t=6s\">Roberta <\/a>\u00a0is 23 years old and she suffers Ataxia, a rare disease which have many different variants.\u00a0<\/li><\/ul><p>The initiative, co-funded by the Erasmus+ Programme of the European Union, aims at the creation of a European network of European foundations, institutions, and entities in order to promote the exchange of experiences and good practices. The partners of the initiative are:<\/p><ul class=\"wp-block-list\"><li>Fundaci\u00f3n Isabel Gemio (Spain)<\/li><li>Federaci\u00f3n Espa\u00f1ola de Enfermedades Neuromusculares (Spain)<\/li><li>Parent Project APS per la Ricerca sulla Distrofa Muscolare (Italy)<\/li><li>Charcot-Marie-Tooth et Neuropathies Peripheriques (France)<\/li><li>Uniamo Federazione Italiana Malattie Rare (Italy)<\/li><\/ul>","protected":false},"excerpt":{"rendered":"<p>Get to know all the stories of December-January: Lethicia is 29 years old, and she suffers from Congenital Hypophosphatasia, an [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":22665,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[719,743],"tags":[],"class_list":["post-16016","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actual-en","category-proyectos-europeos-en"],"_links":{"self":[{"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/posts\/16016","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/comments?post=16016"}],"version-history":[{"count":1,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/posts\/16016\/revisions"}],"predecessor-version":[{"id":16018,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/posts\/16016\/revisions\/16018"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/media\/22665"}],"wp:attachment":[{"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/media?parent=16016"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/categories?post=16016"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/tags?post=16016"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}