{"id":15051,"date":"2022-07-29T12:24:50","date_gmt":"2022-07-29T11:24:50","guid":{"rendered":"https:\/\/www.fundacionisabelgemio.com\/?p=15051"},"modified":"2022-07-29T12:24:50","modified_gmt":"2022-07-29T11:24:50","slug":"get-to-know-all-the-testimonies-of-the-initiative-youthwithcourage-posted-on-june-july","status":"publish","type":"post","link":"https:\/\/www.fundacionisabelgemio.com\/en\/actual-en\/get-to-know-all-the-testimonies-of-the-initiative-youthwithcourage-posted-on-june-july","title":{"rendered":"Get to know all the testimonies of the initiative #youthwithcourage posted on June-July:"},"content":{"rendered":"<div class='avia-iframe-wrap'><iframe loading=\"lazy\" width=\"1500\" height=\"844\" src=\"https:\/\/www.youtube.com\/embed\/UAMs7P87olY?wmode=transparent&amp;rel=0&amp;feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen title=\"YOUTH WITH COURAGE: summary june-july\"><\/iframe><\/div>\n<ul>\n<li><a href=\"https:\/\/www.youtube.com\/watch?v=MZXxDj3OajQ&amp;t=9s\">Mina\u00a0<\/a>lives with a rare disease called DiGeorge\u2019s syndrome or velo-cardio-facial syndrome. When she was a teenager, she was also diagnosed with scoliosis idiopathic.<\/li>\n<li><a href=\"https:\/\/www.youtube.com\/watch?v=eqdVB--z_2I&amp;t=19s\">Mikel<\/a>, 22 years old , has a degenerative neuromuscular disease, called Spinal Muscular Atrophy Type II.<\/li>\n<li><a href=\"https:\/\/www.youtube.com\/watch?v=WvFyGtpKows&amp;t=10s\">Alex<\/a> is the administrator and regional delegate for the association CMT France, which helps patients suffering from Charcot Marie Tooth disease, the disease he also suffers..<\/li>\n<li><a href=\"https:\/\/www.youtube.com\/watch?v=mJ0GAzMBR00&amp;t=1s\">Alicia<\/a> is a young woman of 22 years old who suffers from muscular dystrophy. Her mother points out that society doesn\u2019t worry about rare diseases or muscular dystrophies, and she ask for bigger support.<\/li>\n<li><a href=\"https:\/\/www.youtube.com\/watch?v=3bZWOcNg5zQ&amp;t=1s\">Samuele<\/a>, 21 years old, studies Mechanical Engineering at La Sapienza and is passionate of hockey. He also suffers Duchenne muscular dystrophy (DMD).<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<p>The initiative, co-funded by the Erasmus+ Programme of the European Union, aims at the creation of a European network of European foundations, institutions, and entities in order to promote the exchange of experiences and good practices. The partners of the initiative are:<\/p>\n<ul>\n<li>Fundaci\u00f3n Isabel Gemio (Spain)<\/li>\n<li>Federaci\u00f3n Espa\u00f1ola de Enfermedades Neuromusculares (Spain)<\/li>\n<li>Parent Project APS per la Ricerca sulla Distrofa Muscolare (Italy)<\/li>\n<li>Charcot-Marie-Tooth et Neuropathies Peripheriques (France)<\/li>\n<li>Uniamo Federazione Italiana Malattie Rare (Italy)<\/li>\n<\/ul>\n<p><a href=\"https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2022\/05\/descarga-1.png\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-14858\" src=\"https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2022\/05\/descarga-1.png\" alt=\"\" width=\"421\" height=\"120\" srcset=\"https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2022\/05\/descarga-1.png 421w, https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2022\/05\/descarga-1-300x86.png 300w\" sizes=\"auto, (max-width: 421px) 100vw, 421px\" \/><\/a><\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Mina\u00a0lives with a rare disease called DiGeorge\u2019s syndrome or velo-cardio-facial syndrome. When she was a teenager, she was also diagnosed [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":14857,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[719,743],"tags":[],"class_list":["post-15051","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actual-en","category-proyectos-europeos-en"],"_links":{"self":[{"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/posts\/15051","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/comments?post=15051"}],"version-history":[{"count":3,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/posts\/15051\/revisions"}],"predecessor-version":[{"id":15058,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/posts\/15051\/revisions\/15058"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/media\/14857"}],"wp:attachment":[{"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/media?parent=15051"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/categories?post=15051"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/tags?post=15051"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}