{"id":14916,"date":"2022-06-02T10:59:19","date_gmt":"2022-06-02T09:59:19","guid":{"rendered":"https:\/\/www.fundacionisabelgemio.com\/?p=14916"},"modified":"2022-06-02T10:59:19","modified_gmt":"2022-06-02T09:59:19","slug":"did-you-watch-the-stories-youthwithcourage-of-may","status":"publish","type":"post","link":"https:\/\/www.fundacionisabelgemio.com\/en\/actual-en\/did-you-watch-the-stories-youthwithcourage-of-may","title":{"rendered":"\u00bfDid you watch the stories #youthwithcourage of May?"},"content":{"rendered":"<div class='avia-iframe-wrap'><iframe loading=\"lazy\" width=\"1500\" height=\"844\" src=\"https:\/\/www.youtube.com\/embed\/fHYcaggz5kI?wmode=transparent&amp;rel=0&amp;feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen><\/iframe><\/div>\n<p>Here are the protagonists of the initiative co-funded by the #erasmusplus programme:<\/p>\n<ul>\n<li><span style=\"color: #0000ff;\"><a style=\"color: #0000ff;\" href=\"https:\/\/www.youtube.com\/watch?v=fR5AlJu7USg\">Laura<\/a> (@laura.sanchez.92)<\/span> highlights the importance of professionalized personal assistance for people with disabilities. She has a rare disease called Arthrogryposis Multiplex Congenita.<\/li>\n<li><span style=\"color: #0000ff;\"><a style=\"color: #0000ff;\" href=\"https:\/\/www.youtube.com\/watch?v=QuRo35jiJA0\">Alice<\/a> (<a style=\"color: #0000ff;\" href=\"https:\/\/www.instagram.com\/alifata1988\/\">@alifata1988<\/a>)<\/span> collaborates with\u00a0<span style=\"color: #0000ff;\"><a style=\"color: #0000ff;\" href=\"https:\/\/www.instagram.com\/radioaidel22\/\">@radioaidel22<\/a>\/\u00a0<a style=\"color: #0000ff;\" href=\"https:\/\/www.instagram.com\/aidel22_aps\/\">@aidel22_aps<\/a><\/span>, where she runs a program called \u201cWomen and Disability&#8221;. She suffers from a rare disease called Microdeletion of Chromosome 22.<\/li>\n<li><span style=\"color: #0000ff;\"><a style=\"color: #0000ff;\" href=\"https:\/\/www.youtube.com\/watch?v=p3FYprnjShc\">Juan<\/a> (<a style=\"color: #0000ff;\" href=\"https:\/\/www.instagram.com\/mi_heroe_juan\/\">@mi_heroe_juan<\/a>)<\/span>, the youngest of them all, really likes listening to music. He suffers from Congenital Disorders of Glycosylation (CDG). His mother, Cristina, claims that all the people suffering from a very serious disease deserve a treatment.<\/li>\n<li><span style=\"color: #0000ff;\"><a style=\"color: #0000ff;\" href=\"https:\/\/www.youtube.com\/watch?v=TD0InDLZM0M&amp;t=2s\">Audrey<\/a> <\/span>was diagnosed with the disease Charcot Marie Tooth when she was three and a half years old. She has travelled around the world (<span style=\"color: #0000ff;\"><a style=\"color: #0000ff;\" href=\"https:\/\/www.instagram.com\/roulettesetsacados\/\">@roulettesetsacados<\/a><\/span>) and she is now starting her own business in textile design.<\/li>\n<li><span style=\"color: #0000ff;\"><a style=\"color: #0000ff;\" href=\"https:\/\/www.youtube.com\/watch?v=CozSkkNaVl8\">Michele<\/a>,\u00a0<\/span>who lives in Rome, is passionate about football and Formula1. He lives with Duchenne Muscular Dystrophy (DMD).<\/li>\n<\/ul>\n<p>The initiative, co-funded by the Erasmus+ Programme of the European Union, aims at the creation of a European network of European foundations, institutions, and entities in order to promote the exchange of experiences and good practices. The partners of the initiative are:<\/p>\n<ul>\n<li>Fundaci\u00f3n Isabel Gemio (Spain)<\/li>\n<li>Federaci\u00f3n Espa\u00f1ola de Enfermedades Neuromusculares (Spain)<\/li>\n<li>Parent Project APS per la Ricerca sulla Distrofa Muscolare (Italy)<\/li>\n<li>Charcot-Marie-Tooth et Neuropathies Peripheriques (France)<\/li>\n<li>Uniamo Federazione Italiana Malattie Rare (Italy)<\/li>\n<\/ul>\n<p><a href=\"https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2022\/05\/descarga-1.png\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-14858\" src=\"https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2022\/05\/descarga-1.png\" alt=\"\" width=\"421\" height=\"120\" srcset=\"https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2022\/05\/descarga-1.png 421w, https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2022\/05\/descarga-1-300x86.png 300w\" sizes=\"auto, (max-width: 421px) 100vw, 421px\" \/><\/a><\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Here are the protagonists of the initiative co-funded by the #erasmusplus programme: Laura (@laura.sanchez.92) highlights the importance of professionalized personal [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":14857,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[719,743],"tags":[],"class_list":["post-14916","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actual-en","category-proyectos-europeos-en"],"_links":{"self":[{"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/posts\/14916","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/comments?post=14916"}],"version-history":[{"count":2,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/posts\/14916\/revisions"}],"predecessor-version":[{"id":15052,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/posts\/14916\/revisions\/15052"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/media\/14857"}],"wp:attachment":[{"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/media?parent=14916"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/categories?post=14916"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/tags?post=14916"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}