{"id":23279,"date":"2021-06-10T12:39:56","date_gmt":"2021-06-10T11:39:56","guid":{"rendered":"https:\/\/www.fundacionisabelgemio.com\/familias-activas-contenido"},"modified":"2023-03-15T12:57:09","modified_gmt":"2023-03-15T11:57:09","slug":"familias-activas-contenido","status":"publish","type":"page","link":"https:\/\/www.fundacionisabelgemio.com\/en\/familias-activas-contenido","title":{"rendered":"Active Families &#8211; Content"},"content":{"rendered":"<section  class='av_textblock_section av-1ktyp8m-d0e1155ce86966c935d22014779883ef'  itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p>Below are some examples of families and parents involved in the fight for the eradication of rare diseases through research. Thanks to them and their efforts, courage and will, we will one day achieve a world where these terrible diseases are cured and the quality of life of those affected and their families improved.<\/p>\n<\/div><\/section>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-1j76see-64c62c683a62625b5ad8c434b07c6362\">\n#top .hr.hr-invisible.av-1j76see-64c62c683a62625b5ad8c434b07c6362{\nheight:20px;\n}\n<\/style>\n<div  class='hr av-1j76see-64c62c683a62625b5ad8c434b07c6362 hr-invisible  avia-builder-el-1  el_after_av_textblock  el_before_av_heading '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-3m6qfq1-fe2eca81967ae99488a4f7ddd288ca43\">\n#top .av-special-heading.av-3m6qfq1-fe2eca81967ae99488a4f7ddd288ca43{\npadding-bottom:20px;\n}\nbody .av-special-heading.av-3m6qfq1-fe2eca81967ae99488a4f7ddd288ca43 .av-special-heading-tag .heading-char{\nfont-size:25px;\n}\n.av-special-heading.av-3m6qfq1-fe2eca81967ae99488a4f7ddd288ca43 .av-subheading{\nfont-size:15px;\n}\n<\/style>\n<div  class='av-special-heading av-3m6qfq1-fe2eca81967ae99488a4f7ddd288ca43 av-special-heading-h3 blockquote modern-quote  avia-builder-el-2  el_after_av_hr  el_before_av_two_fifth '><h3 class='av-special-heading-tag'  itemprop=\"headline\"  >Loli Parra<\/h3><div class='av-subheading av-subheading_below'><p>Socu\u00e9llanos- Ciudad Real<\/p>\n<\/div><div class=\"special-heading-border\"><div class=\"special-heading-inner-border\"><\/div><\/div><\/div>\n<div class='flex_column av-1fk9kh2-f1199583740b124d8d111665972e85b7 av_two_fifth  avia-builder-el-3  el_after_av_heading  el_before_av_three_fifth  first flex_column_div '     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-lb4xu94a-697912dbf0f291bfe45db2ab55320df9\">\n.avia-image-container.av-lb4xu94a-697912dbf0f291bfe45db2ab55320df9 img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-lb4xu94a-697912dbf0f291bfe45db2ab55320df9 .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-lb4xu94a-697912dbf0f291bfe45db2ab55320df9 av-styling- avia-align-center  avia-builder-el-4  avia-builder-el-no-sibling '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-22547 avia-img-lazy-loading-not-22547 avia_image ' src=\"https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2022\/12\/20181222_184958-1030x773-1.jpg\" alt='' title='20181222_184958-1030x773'  height=\"773\" width=\"1030\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2022\/12\/20181222_184958-1030x773-1.jpg 1030w, https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2022\/12\/20181222_184958-1030x773-1-300x225.jpg 300w, https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2022\/12\/20181222_184958-1030x773-1-768x576.jpg 768w, https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2022\/12\/20181222_184958-1030x773-1-705x529.jpg 705w, https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2022\/12\/20181222_184958-1030x773-1-450x338.jpg 450w, https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2022\/12\/20181222_184958-1030x773-1-600x450.jpg 600w\" sizes=\"(max-width: 1030px) 100vw, 1030px\" \/><\/div><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-1djhyx2-bd89aab323b26c1221fe6fd7d82af3e0\">\n.flex_column.av-1djhyx2-bd89aab323b26c1221fe6fd7d82af3e0{\n-webkit-border-radius:0px 0px 0px 0px;\n-moz-border-radius:0px 0px 0px 0px;\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div class='flex_column av-1djhyx2-bd89aab323b26c1221fe6fd7d82af3e0 av_three_fifth  avia-builder-el-5  el_after_av_two_fifth  el_before_av_hr  flex_column_div av-zero-column-padding '     ><section  class='av_textblock_section av-1aj5xom-2c7058da4c5f511b2e707c4815662f13'  itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p>Loli is Sergio&#8217;s mother. Her son suffers from Ehlers Danlos syndrome, a disease for which there is currently no treatment. When Sergio was born she was adamant that she would not give up trying to help him. To help with the research of Ehlers Danlos syndrome and other rare diseases she decided to organize a flamenco festival in her town, an initiative that was welcomed with the warmth of all her neighbors. Now when the festival is celebrated, she raffles baskets and auctions off paintings and shirts signed by football teams. This is all thanks to the solidarity of businesses, companies, and supporters of her mission. As she acknowledges, &#8220;If all parents in Spain did this, many illnesses might have treatments.\u201d Loli knows that the only solution is funding and research projects for Sergio&#8217;s illness.<\/p>\n<\/div><\/section><\/div><div  class='hr av-192s05y-fde872f85a706ae243fab9a3e1b824c4 hr-default  avia-builder-el-7  el_after_av_three_fifth  el_before_av_heading '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div><\/p>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-2vwg2u1-bb71b18d6ed7fbd0dc6cee7f3665dff0\">\n#top .av-special-heading.av-2vwg2u1-bb71b18d6ed7fbd0dc6cee7f3665dff0{\npadding-bottom:20px;\n}\nbody .av-special-heading.av-2vwg2u1-bb71b18d6ed7fbd0dc6cee7f3665dff0 .av-special-heading-tag .heading-char{\nfont-size:25px;\n}\n.av-special-heading.av-2vwg2u1-bb71b18d6ed7fbd0dc6cee7f3665dff0 .av-subheading{\nfont-size:15px;\n}\n<\/style>\n<div  class='av-special-heading av-2vwg2u1-bb71b18d6ed7fbd0dc6cee7f3665dff0 av-special-heading-h3 blockquote modern-quote  avia-builder-el-8  el_after_av_hr  el_before_av_two_fifth '><h3 class='av-special-heading-tag'  itemprop=\"headline\"  >Olga Bienvenido and Jose<\/h3><div class='av-subheading av-subheading_below'><p>La Vall d&#8217;Uix\u00f3 &#8211; Castell\u00f3n<\/p>\n<\/div><div class=\"special-heading-border\"><div class=\"special-heading-inner-border\"><\/div><\/div><\/div>\n<div class='flex_column av-mmbpja-26facaeb350b23d2db13acb5e1bfeaa6 av_two_fifth  avia-builder-el-9  el_after_av_heading  el_before_av_three_fifth  first flex_column_div '     ><section  class='av_textblock_section av-1ws2om-8e595fc4545a2b6b1d2ccab26f761d8d'  itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p><a href=\"https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2020\/12\/OLGA-BIENVENIDO-Y-JOSE.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-13429\" src=\"https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2020\/12\/OLGA-BIENVENIDO-Y-JOSE.jpg\" alt=\"\" width=\"3088\" height=\"2320\" srcset=\"https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2020\/12\/OLGA-BIENVENIDO-Y-JOSE.jpg 3088w, https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2020\/12\/OLGA-BIENVENIDO-Y-JOSE-300x225.jpg 300w, https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2020\/12\/OLGA-BIENVENIDO-Y-JOSE-768x577.jpg 768w, https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2020\/12\/OLGA-BIENVENIDO-Y-JOSE-1030x774.jpg 1030w, https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2020\/12\/OLGA-BIENVENIDO-Y-JOSE-1500x1127.jpg 1500w, https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2020\/12\/OLGA-BIENVENIDO-Y-JOSE-705x530.jpg 705w, https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2020\/12\/OLGA-BIENVENIDO-Y-JOSE-600x451.jpg 600w\" sizes=\"auto, (max-width: 3088px) 100vw, 3088px\" \/><\/a><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-13ob6ue-ebbff66aa932c545434f89591d8c1b9d\">\n.flex_column.av-13ob6ue-ebbff66aa932c545434f89591d8c1b9d{\n-webkit-border-radius:0px 0px 0px 0px;\n-moz-border-radius:0px 0px 0px 0px;\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div class='flex_column av-13ob6ue-ebbff66aa932c545434f89591d8c1b9d av_three_fifth  avia-builder-el-11  el_after_av_two_fifth  el_before_av_hr  flex_column_div av-zero-column-padding '     ><section  class='av_textblock_section av-10zje6e-a12938beb4fd2ab9e5ff3b776bc6ed04'  itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><div>\n<div class=\"nH\">\n<div class=\"nH\">\n<div class=\"nH bkL\">\n<div class=\"no\">\n<div class=\"nH bkK nn\">\n<div class=\"nH\">\n<div class=\"nH\">\n<div class=\"nH ar4 z\">\n<div class=\"aeI\">\n<div class=\"AO\">\n<div id=\":3\" class=\"Tm aeJ\">\n<div id=\":1\" class=\"aeF\">\n<div class=\"nH\">\n<div class=\"nH\" role=\"main\">\n<div class=\"nH g\">\n<div dir=\"ltr\">We are Jose and Olga, \u00c1lvaro&#8217;s parents. In 2012 due to a chance finding, our 16 month old son was diagnosed with Duchenne muscular dystrophy. From that day our life has been turned upside down. A path of suffering was ahead of us, but also great lessons in unconditional love for \u00c1lvaro and between us grew in the face of adversity.<\/div>\n<div dir=\"ltr\">We collaborate with the foundation as much as we can, with contributions monthly, buying their t-shirts, masks, the book, etc.<\/div>\n<div dir=\"ltr\">Throughout the pandemic we have also hand made scrub caps in solidarity with healthcare workers and to raise funds for research.<\/div>\n<div dir=\"ltr\">Now more than ever we can see how vulnerable patients with rare diseases are. Our health system and research institutions need more awareness from politicians and society as a whole. The motto of the Isabel Gemio Foundation says it well: \u201cSCIENCE HEALS\u201d. We just hope that our struggle can change the lives of millions of people in the future.<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"nH nn\">\n<div class=\"no\">\n<div class=\"nH bAw nn\">\n<div class=\"brC-aT5-aOt-Jw\" role=\"complementary\" aria-label=\"Panel lateral\">\n<div class=\"brC-aT5-aOt-bsf-Jw\">\n<div class=\"brC-bsf-aT5-aOt\" tabindex=\"0\" role=\"tablist\">\n<div id=\"gsc-gab-6\" class=\"bse-bvF-I aT5-aOt-I bse-bvF-aLp\" role=\"tab\" data-guest-app-id=\"6\" aria-label=\"Calendar\" aria-disabled=\"false\" aria-selected=\"false\">\n<div class=\"aT5-aOt-I-JX-atM aT5-aOt-I-JX-atM-Kv\"><\/div>\n<div class=\"aT5-aOt-I-JX-atM aT5-aOt-I-JX-atM-J6\"><\/div>\n<div class=\"aT5-aOt-I-JX-Jw\"><\/div>\n<\/div>\n<div id=\"gsc-gab-2\" class=\"bse-bvF-I aT5-aOt-I bse-bvF-a9p\" role=\"tab\" data-guest-app-id=\"2\" aria-label=\"Keep\" aria-disabled=\"false\" aria-selected=\"false\">\n<div class=\"aT5-aOt-I-JX-atM aT5-aOt-I-JX-atM-Kv\"><\/div>\n<div class=\"aT5-aOt-I-JX-atM aT5-aOt-I-JX-atM-J6\"><\/div>\n<div class=\"aT5-aOt-I-JX-Jw\"><\/div>\n<\/div>\n<div id=\"gsc-gab-4\" class=\"bse-bvF-I aT5-aOt-I bse-bvF-aLp\" role=\"tab\" data-guest-app-id=\"4\" aria-label=\"Tasks\" aria-disabled=\"false\" aria-selected=\"false\">\n<div class=\"aT5-aOt-I-JX-atM aT5-aOt-I-JX-atM-Kv\"><\/div>\n<div class=\"aT5-aOt-I-JX-atM aT5-aOt-I-JX-atM-J6\"><\/div>\n<div class=\"aT5-aOt-I-JX-Jw\"><\/div>\n<\/div>\n<div id=\"gsc-gab-9\" class=\"bse-bvF-I aT5-aOt-I bse-bvF-aLp\" role=\"tab\" data-guest-app-id=\"9\" aria-label=\"Contactos\" aria-disabled=\"false\" aria-selected=\"false\">\n<div class=\"aT5-aOt-I-JX-atM aT5-aOt-I-JX-atM-Kv\"><\/div>\n<div class=\"aT5-aOt-I-JX-atM aT5-aOt-I-JX-atM-J6\"><\/div>\n<div class=\"aT5-aOt-I-JX-Jw\"><\/div>\n<\/div>\n<div id=\":16v\" class=\"brC-aT5-aOt-axR\" role=\"separator\" aria-hidden=\"false\" aria-disabled=\"true\"><\/div>\n<div id=\"qJTzr\" class=\"bse-bvF-I aT5-aOt-I\" role=\"tab\" aria-label=\"Descargar complementos\" aria-selected=\"false\">\n<div class=\"aT5-aOt-I-JX-atM aT5-aOt-I-JX-atM-Kv\"><\/div>\n<div class=\"aT5-aOt-I-JX-atM aT5-aOt-I-JX-atM-J6\"><\/div>\n<div class=\"aT5-aOt-I-JX-Jw\"><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"brC-dA-I-Jw\" role=\"navigation\" aria-label=\"Mostrar u ocultar el panel lateral\">\n<div class=\"aT5-aOt-I brC-dA-I\" tabindex=\"0\" role=\"button\" aria-pressed=\"false\" aria-label=\"Ocultar el panel lateral\">\n<div class=\"aT5-aOt-I-JX-atM\"><\/div>\n<div class=\"aT5-aOt-I-JX-Jw\"><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"dJ\"><\/div>\n<\/div>\n<\/div>\n<div class=\"dJ\"><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"vY nq\"><\/div>\n<div>\n<div><\/div>\n<\/div>\n<\/div><\/section><\/div><div  class='hr av-192s05y-10-12c7b4b636ed27a1888fa398c90f0468 hr-default  avia-builder-el-13  el_after_av_three_fifth  el_before_av_heading '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div><\/p>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-2f2nit5-515e2471e2e4f1eb8312c80e4ce8b22a\">\n#top .av-special-heading.av-2f2nit5-515e2471e2e4f1eb8312c80e4ce8b22a{\npadding-bottom:20px;\n}\nbody .av-special-heading.av-2f2nit5-515e2471e2e4f1eb8312c80e4ce8b22a .av-special-heading-tag .heading-char{\nfont-size:25px;\n}\n.av-special-heading.av-2f2nit5-515e2471e2e4f1eb8312c80e4ce8b22a .av-subheading{\nfont-size:15px;\n}\n<\/style>\n<div  class='av-special-heading av-2f2nit5-515e2471e2e4f1eb8312c80e4ce8b22a av-special-heading-h3 blockquote modern-quote  avia-builder-el-14  el_after_av_hr  el_before_av_two_fifth '><h3 class='av-special-heading-tag'  itemprop=\"headline\"  >Mar\u00eda Encarnaci\u00f3n L\u00f3pez \u00c1lvarez<\/h3><div class='av-subheading av-subheading_below'><p>Cuero Candamo &#8211; Asturias<\/p>\n<\/div><div class=\"special-heading-border\"><div class=\"special-heading-inner-border\"><\/div><\/div><\/div>\n<div class='flex_column av-161ibie-e5d39078d3231b1b8e33cd4645422b6a av_two_fifth  avia-builder-el-15  el_after_av_heading  el_before_av_three_fifth  first flex_column_div '     ><div  class='avia-video av-1493nae-a9a4d246379e35fe405726adc6ccf15c avia-video-16-9 av-no-preview-image avia-video-load-always av-lazyload-immediate av-lazyload-video-embed'  itemprop=\"video\" itemtype=\"https:\/\/schema.org\/VideoObject\"  data-original_url='https:\/\/www.youtube.com\/watch?v=E-NqTOr--18'><script type='text\/html' class='av-video-tmpl'><div class='avia-iframe-wrap'><iframe loading=\"lazy\" title=\"Maria Encarnaci\u00f3n\" width=\"1500\" height=\"844\" src=\"https:\/\/www.youtube.com\/embed\/E-NqTOr--18?wmode=transparent&amp;rel=0&amp;feature=oembed&autoplay=0&loop=0&controls=1&mute=0\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" allowfullscreen><\/iframe><\/div><\/script><div class='av-click-to-play-overlay'><div class=\"avia_playpause_icon\"><\/div><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-13ob6ue-7-c7926c7565b1309f992e4b722ce8c81f\">\n.flex_column.av-13ob6ue-7-c7926c7565b1309f992e4b722ce8c81f{\n-webkit-border-radius:0px 0px 0px 0px;\n-moz-border-radius:0px 0px 0px 0px;\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div class='flex_column av-13ob6ue-7-c7926c7565b1309f992e4b722ce8c81f av_three_fifth  avia-builder-el-17  el_after_av_two_fifth  el_before_av_hr  flex_column_div av-zero-column-padding '     ><section  class='av_textblock_section av-10zje6e-6-75536322f20f4f600f020c7b7ed69cce'  itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p>Encarnita is a courageous mother with a son who suffers from muscular dystrophy. She does not rest when it comes to helping finance the research projects that we carry out through the foundation. These projects are crucial and often require commercial activity and dissemination of information about rare diseases.<\/p>\n<p>There are several markets and fairs that Mar\u00eda has attended to show and sell her homemade products and goods in order to raise funds for our foundation. Handmade soaps, crochet bracelets, dolls, nativity scenes, and Asturian sweets are some of the products she makes in solidarity with our mission and goals.<\/p>\n<\/div><\/section><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-ztejp2-7a27ebc65717bd1935ccda70569f476f\">\n#top .hr.hr-invisible.av-ztejp2-7a27ebc65717bd1935ccda70569f476f{\nheight:20px;\n}\n<\/style>\n<div  class='hr av-ztejp2-7a27ebc65717bd1935ccda70569f476f hr-invisible  avia-builder-el-19  el_after_av_three_fifth  el_before_av_heading '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div><\/p>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-211w855-1e1b074be3c9e4daa2abd454fe102514\">\n#top .av-special-heading.av-211w855-1e1b074be3c9e4daa2abd454fe102514{\npadding-bottom:20px;\n}\nbody .av-special-heading.av-211w855-1e1b074be3c9e4daa2abd454fe102514 .av-special-heading-tag .heading-char{\nfont-size:25px;\n}\n.av-special-heading.av-211w855-1e1b074be3c9e4daa2abd454fe102514 .av-subheading{\nfont-size:15px;\n}\n<\/style>\n<div  class='av-special-heading av-211w855-1e1b074be3c9e4daa2abd454fe102514 av-special-heading-h3 blockquote modern-quote  avia-builder-el-20  el_after_av_hr  el_before_av_two_fifth '><h3 class='av-special-heading-tag'  itemprop=\"headline\"  >Jose Mar\u00eda Carrasco<\/h3><div class='av-subheading av-subheading_below'><p>San Pedro del Pinatar &#8211; Murcia<\/p>\n<\/div><div class=\"special-heading-border\"><div class=\"special-heading-inner-border\"><\/div><\/div><\/div>\n<div class='flex_column av-wj8046-d7fc7495df668b27b675c322439c5ea2 av_two_fifth  avia-builder-el-21  el_after_av_heading  el_before_av_three_fifth  first flex_column_div '     ><div  class='avia-video av-vafzpi-86cc60a3c3887cb309cbbab288e801c3 avia-video-16-9 av-no-preview-image avia-video-load-always av-lazyload-immediate av-lazyload-video-embed'  itemprop=\"video\" itemtype=\"https:\/\/schema.org\/VideoObject\"  data-original_url='https:\/\/www.youtube.com\/watch?v=fJEjkxUwen4'><script type='text\/html' class='av-video-tmpl'><div class='avia-iframe-wrap'><iframe loading=\"lazy\" title=\"Un caf\u00e9 por Guillen. Testimonio\" width=\"1500\" height=\"844\" src=\"https:\/\/www.youtube.com\/embed\/fJEjkxUwen4?wmode=transparent&amp;rel=0&amp;feature=oembed&autoplay=0&loop=0&controls=1&mute=0\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" allowfullscreen><\/iframe><\/div><\/script><div class='av-click-to-play-overlay'><div class=\"avia_playpause_icon\"><\/div><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-sdd75i-511372b7b9520deb2728d52c17eb1aa2\">\n.flex_column.av-sdd75i-511372b7b9520deb2728d52c17eb1aa2{\n-webkit-border-radius:0px 0px 0px 0px;\n-moz-border-radius:0px 0px 0px 0px;\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div class='flex_column av-sdd75i-511372b7b9520deb2728d52c17eb1aa2 av_three_fifth  avia-builder-el-23  el_after_av_two_fifth  el_before_av_hr  flex_column_div av-zero-column-padding '     ><section  class='av_textblock_section av-r3kyqe-58dc53d767ed30919667d6508ac29c0a'  itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p>The &#8216;Guillen&#8217; family from San Pedro del Pinatar has a child with muscular dystrophy. Despite this disease that has struck their family, they continue to promote a national solidarity project through SMS donations and host a gala-dinner held annually in San Pedro del Pinatar (Murcia). They now also have started new projects such as solidarity races to raise funds for the research<br \/>\nof rare diseases.<\/p>\n<p>The &#8216;A coffee for Guillen&#8217; SMS campaign invites you to donate the symbolic amount of the price of a coffee (1.20 euros) through a short message by texting the word FUERZA to 28030. All funds raised are for the purposes of the Isabel Gemio Foundation and the funding for research into rare diseases.<\/p>\n<p>Guillen&#8217;s family has promoted this solidarity project at a national level to concentrate efforts and provide more resources for research and the promotion of drug development for rare diseases that have around three million affected in Spain.<\/p>\n<\/div><\/section><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-ps5592-7d5e5d76e7c3f369d5d17e8a6703c3cf\">\n#top .hr.hr-invisible.av-ps5592-7d5e5d76e7c3f369d5d17e8a6703c3cf{\nheight:20px;\n}\n<\/style>\n<div  class='hr av-ps5592-7d5e5d76e7c3f369d5d17e8a6703c3cf hr-invisible  avia-builder-el-25  el_after_av_three_fifth  el_before_av_heading '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div><\/p>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-5f8c2h-5ae213645bce9c364758663ab9434f9f\">\n#top .av-special-heading.av-5f8c2h-5ae213645bce9c364758663ab9434f9f{\npadding-bottom:20px;\n}\nbody .av-special-heading.av-5f8c2h-5ae213645bce9c364758663ab9434f9f .av-special-heading-tag .heading-char{\nfont-size:25px;\n}\n.av-special-heading.av-5f8c2h-5ae213645bce9c364758663ab9434f9f .av-subheading{\nfont-size:15px;\n}\n<\/style>\n<div  class='av-special-heading av-5f8c2h-5ae213645bce9c364758663ab9434f9f av-special-heading-h3 blockquote modern-quote  avia-builder-el-26  el_after_av_hr  el_before_av_two_fifth '><h3 class='av-special-heading-tag'  itemprop=\"headline\"  >Network of Mothers and Fathers in C\u00f3rdoba<\/h3><div class='av-subheading av-subheading_below'><p>Family Isabel Roig and Jes\u00fas Pineda, Volunteer Rafi Garc\u00eda, Volunteer Pilar Mart\u00ednez, Grandmother Mar\u00eda Rubiales, Volunteer Araceli Bergillos, Volunteer M\u00aa Jos\u00e9 Garc\u00eda, Volunteers Charo Ortiz and Paco G\u00f3mez, Concha Pedraza Family, Family Antonia and Santiago Vallejo&#8230; and many many more.<\/p>\n<\/div><div class=\"special-heading-border\"><div class=\"special-heading-inner-border\"><\/div><\/div><\/div>\n<div class='flex_column av-mmbpja-9-2ac382bc856e90886e08ddfd823022fa av_two_fifth  avia-builder-el-27  el_after_av_heading  el_before_av_three_fifth  first flex_column_div '     ><p><div  class='avia-video av-k8upxi-332661e19c58bb88ed0922ac36f9d2ee avia-video-16-9 av-no-preview-image avia-video-load-always av-lazyload-immediate av-lazyload-video-embed'  itemprop=\"video\" itemtype=\"https:\/\/schema.org\/VideoObject\"  data-original_url='https:\/\/vimeo.com\/83194877'><script type='text\/html' class='av-video-tmpl'><div class='avia-iframe-wrap'><iframe loading=\"lazy\" title=\"Gran abrazo solidario a la Mezquita-Catedral de C&amp;oacute;rdoba\" src=\"https:\/\/player.vimeo.com\/video\/83194877?h=01d42c9740&amp;dnt=1&amp;app_id=122963&autoplay=0&loop=0&controls=1&muted=0\" width=\"1280\" height=\"720\" frameborder=\"0\" allow=\"autoplay; fullscreen; picture-in-picture\" allowfullscreen><\/iframe><\/div><\/script><div class='av-click-to-play-overlay'><div class=\"avia_playpause_icon\"><\/div><\/div><\/div><br \/>\n<section  class='av_textblock_section av-1ws2om-8-5f912d38d8fcc50aaea03d5ac812db6c'  itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p>Produced by Antonio Leal<\/p>\n<\/div><\/section><\/p><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-1q8y6e-935751cf8aa7be49b06552f7a4f484a9\">\n.flex_column.av-1q8y6e-935751cf8aa7be49b06552f7a4f484a9{\n-webkit-border-radius:0px 0px 0px 0px;\n-moz-border-radius:0px 0px 0px 0px;\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div class='flex_column av-1q8y6e-935751cf8aa7be49b06552f7a4f484a9 av_three_fifth  avia-builder-el-30  el_after_av_two_fifth  el_before_av_hr  flex_column_div av-zero-column-padding '     ><section  class='av_textblock_section av-f3sc92-5f0c50809e931756f4cb18318055a74a'  itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p>The Spanish Network of Mothers and Fathers in Solidarity is a collective of parents supporting research into muscular dystrophies and other rare diseases that their children and relatives suffer by carrying out various events and activities.<\/p>\n<p>Their mission focuses on creating informational campaigns and raising awareness for muscular dystrophies and other rare diseases. They work to forge a path for more research into these diseases through fundraising campaigns such as grants, concerts, street markets solidarity, festivals, cooperation with other associations, collaborations with schools, solidarity products, among other avenues.<\/p>\n<p>The mothers and fathers in this network, with their tireless work and courage, have currently contributed 49,310 euros to research in rare diseases, but they have no plans on stopping trying to find solutions that bring hope to so many families. If you want to help them, call us or their number below and we will let you know how.<\/p>\n<ul>\n<li class=\"p1\">www.reddepadressolidarios.com<\/li>\n<li class=\"p1\">reddepadressolidarios@gmail.com<\/li>\n<li class=\"p1\">Tlf. 627 80 13 21 &#8211; 666 529 995<\/li>\n<\/ul>\n<\/div><\/section><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-dl5thy-ac94c1a79159c358ca26dd93043e88ad\">\n#top .hr.hr-invisible.av-dl5thy-ac94c1a79159c358ca26dd93043e88ad{\nheight:20px;\n}\n<\/style>\n<div  class='hr av-dl5thy-ac94c1a79159c358ca26dd93043e88ad hr-invisible  avia-builder-el-32  el_after_av_three_fifth  el_before_av_hr '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div><\/p>\n<div  class='hr av-192s05y-5-211f240ece8815178a97d74a5100f46a hr-default  avia-builder-el-33  el_after_av_hr  el_before_av_heading '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-17ndnq1-a882b87b654f4c4451af9d1c173face5\">\n#top .av-special-heading.av-17ndnq1-a882b87b654f4c4451af9d1c173face5{\npadding-bottom:20px;\n}\nbody .av-special-heading.av-17ndnq1-a882b87b654f4c4451af9d1c173face5 .av-special-heading-tag .heading-char{\nfont-size:25px;\n}\n.av-special-heading.av-17ndnq1-a882b87b654f4c4451af9d1c173face5 .av-subheading{\nfont-size:15px;\n}\n<\/style>\n<div  class='av-special-heading av-17ndnq1-a882b87b654f4c4451af9d1c173face5 av-special-heading-h3 blockquote modern-quote  avia-builder-el-34  el_after_av_hr  el_before_av_two_fifth '><h3 class='av-special-heading-tag'  itemprop=\"headline\"  >Paco, Graci, Jorge and Alberto<\/h3><div class='av-subheading av-subheading_below'><p>Miguelturra, Ciudad Real<\/p>\n<\/div><div class=\"special-heading-border\"><div class=\"special-heading-inner-border\"><\/div><\/div><\/div>\n<div class='flex_column av-mmbpja-4-1e393999e31a90f3cf7aac318f36d6ce av_two_fifth  avia-builder-el-35  el_after_av_heading  el_before_av_three_fifth  first flex_column_div '     ><section  class='av_textblock_section av-1ws2om-3-707332134e1107d021399c4eca836b71'  itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p><a href=\"http:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2019\/02\/FOTO-PACO-Y-FAMILIA-1.png\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-10872\" src=\"http:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2019\/02\/FOTO-PACO-Y-FAMILIA-1-225x300.png\" alt=\"\" width=\"225\" height=\"300\" srcset=\"https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2019\/02\/FOTO-PACO-Y-FAMILIA-1-225x300.png 225w, https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2019\/02\/FOTO-PACO-Y-FAMILIA-1-768x1024.png 768w, https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2019\/02\/FOTO-PACO-Y-FAMILIA-1-773x1030.png 773w, https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2019\/02\/FOTO-PACO-Y-FAMILIA-1-1125x1500.png 1125w, https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2019\/02\/FOTO-PACO-Y-FAMILIA-1-529x705.png 529w, https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2019\/02\/FOTO-PACO-Y-FAMILIA-1-600x800.png 600w, https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2019\/02\/FOTO-PACO-Y-FAMILIA-1.png 1200w\" sizes=\"auto, (max-width: 225px) 100vw, 225px\" \/><\/a><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-1q8y6e-2-e347d8a045637e7f42c478fa6b0a07fa\">\n.flex_column.av-1q8y6e-2-e347d8a045637e7f42c478fa6b0a07fa{\n-webkit-border-radius:0px 0px 0px 0px;\n-moz-border-radius:0px 0px 0px 0px;\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div class='flex_column av-1q8y6e-2-e347d8a045637e7f42c478fa6b0a07fa av_three_fifth  avia-builder-el-37  el_after_av_two_fifth  el_before_av_heading  flex_column_div av-zero-column-padding '     ><section  class='av_textblock_section av-f3sc92-1-31f4bcd4486a727d88c4a37e8103661e'  itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p>Paco, Graci, Jorge and Alberto live in Miguelturra (Ciudad Real). Alberto was born in 2003 and in 2007 he was diagnosed with Duchenne muscular dystrophy. His diagnosis has changed the lives of his entire family and friends. However, his and his brother\u2019s character, strength, and sense of responsibility has made them into a great solid pillar for everyone in their lives. They collaborate with the foundation whenever there is an opportunity, from school solidarity markets to solidarity concerts, always in the aims of promoting research and winning this war against Duchenne.<\/p>\n<\/div><\/section><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-vpku49-825cff677e051ffe89ba945c81624929\">\n#top .av-special-heading.av-vpku49-825cff677e051ffe89ba945c81624929{\npadding-bottom:20px;\n}\nbody .av-special-heading.av-vpku49-825cff677e051ffe89ba945c81624929 .av-special-heading-tag .heading-char{\nfont-size:25px;\n}\n.av-special-heading.av-vpku49-825cff677e051ffe89ba945c81624929 .av-subheading{\nfont-size:15px;\n}\n<\/style>\n<div  class='av-special-heading av-vpku49-825cff677e051ffe89ba945c81624929 av-special-heading-h3 blockquote modern-quote  avia-builder-el-39  el_after_av_three_fifth  el_before_av_two_fifth '><h3 class='av-special-heading-tag'  itemprop=\"headline\"  >Antonio Alfaro and Trinidad Dom\u00ednguez<\/h3><div class='av-subheading av-subheading_below'><p>Cheste, Valencia<\/p>\n<\/div><div class=\"special-heading-border\"><div class=\"special-heading-inner-border\"><\/div><\/div><\/div><\/p>\n<div class='flex_column av-b4b36e-c29a75fc8dbfdaab32216d903bae8aa1 av_two_fifth  avia-builder-el-40  el_after_av_heading  el_before_av_three_fifth  first flex_column_div '     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-8i38p2-4f9e396d65e7d49b1864d8ddce7dc351\">\n.avia-image-container.av-8i38p2-4f9e396d65e7d49b1864d8ddce7dc351 img.avia_image{\nbox-shadow:none;\n}\n.avia-image-container.av-8i38p2-4f9e396d65e7d49b1864d8ddce7dc351 .av-image-caption-overlay-center{\ncolor:#ffffff;\n}\n<\/style>\n<div  class='avia-image-container av-8i38p2-4f9e396d65e7d49b1864d8ddce7dc351 av-styling-no-styling avia-align-center  avia-builder-el-41  avia-builder-el-no-sibling '   itemprop=\"image\" itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/ImageObject\" ><div class=\"avia-image-container-inner\"><div class=\"avia-image-overlay-wrap\"><img decoding=\"async\" class='wp-image-16408 avia-img-lazy-loading-not-16408 avia_image ' src=\"https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2015\/05\/AntonioTrinidad.jpg\" alt='' title='AntonioTrinidad'  height=\"380\" width=\"640\"  itemprop=\"thumbnailUrl\" srcset=\"https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2015\/05\/AntonioTrinidad.jpg 640w, https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2015\/05\/AntonioTrinidad-300x178.jpg 300w, https:\/\/www.fundacionisabelgemio.com\/wp-content\/uploads\/2015\/05\/AntonioTrinidad-450x267.jpg 450w\" sizes=\"(max-width: 640px) 100vw, 640px\" \/><\/div><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-846k06-93f17dc6aba8ad8fc722dde3f67274cd\">\n.flex_column.av-846k06-93f17dc6aba8ad8fc722dde3f67274cd{\n-webkit-border-radius:0px 0px 0px 0px;\n-moz-border-radius:0px 0px 0px 0px;\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div class='flex_column av-846k06-93f17dc6aba8ad8fc722dde3f67274cd av_three_fifth  avia-builder-el-42  el_after_av_two_fifth  el_before_av_hr  flex_column_div av-zero-column-padding '     ><section  class='av_textblock_section av-583cba-41030175ebb824f443a385632e4f0a5e'  itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p>Antonio and Trini are the parents of Adri\u00e1n who suffers from Duchenne muscular dystrophy. From the moment of his diagnosis, they mobilized to raise awareness for this rare disease. They recognize that the only way to overcome these diseases is through research. Adri\u00e1n is currently being treated by Dr. Vilchez at Hospital La Fe in Valencia who is also a member of our foundation&#8217;s scientific committee. For this reason, and being supported by his city and its council, on June 7, 2015 Dr. Vilchez organized a special Charity Festival in the Pavilion Cheste Sports Center: &#8220;All for Adrian&#8221;. All the funds raised from this event went to the research projects against Duchenne muscular dystrophy, in order to find a treatment that makes it possible to cure it.<\/p>\n<p>Not only has this festival been organized, but countless companies and celebrities have donated altruistically or have participated in fundraising in order to be able to raise more funds for research into this disease that will benefit not only Adri\u00e1n, but every child and person who suffers from it.<\/p>\n<\/div><\/section><\/div>\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-3j99py-a9492109b7a3e08b253f03bbe1b5e6c7\">\n#top .hr.hr-invisible.av-3j99py-a9492109b7a3e08b253f03bbe1b5e6c7{\nheight:20px;\n}\n<\/style>\n<div  class='hr av-3j99py-a9492109b7a3e08b253f03bbe1b5e6c7 hr-invisible  avia-builder-el-44  el_after_av_three_fifth  el_before_av_one_full '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div><\/p>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-2bzp6u-4500d1ccb2f2fd0a237569eefb149c89\">\n.flex_column.av-2bzp6u-4500d1ccb2f2fd0a237569eefb149c89{\n-webkit-border-radius:0px 0px 0px 0px;\n-moz-border-radius:0px 0px 0px 0px;\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div class='flex_column av-2bzp6u-4500d1ccb2f2fd0a237569eefb149c89 av_one_full  avia-builder-el-45  el_after_av_hr  avia-builder-el-last  first flex_column_div av-zero-column-padding '     ><\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"class_list":["post-23279","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/pages\/23279","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/comments?post=23279"}],"version-history":[{"count":8,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/pages\/23279\/revisions"}],"predecessor-version":[{"id":23295,"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/pages\/23279\/revisions\/23295"}],"wp:attachment":[{"href":"https:\/\/www.fundacionisabelgemio.com\/en\/wp-json\/wp\/v2\/media?parent=23279"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}