Mission
The FUNDACIÓN ISABEL GEMIO for the Research of Muscular Dystrophies and other Rare Diseases, was born in 2008 with the aim of contributing to accelerate research in Muscular Dystrophies, other Neuromuscular Diseases and Rare Diseases, in those biological, physiopathological, genetic or therapeutic aspects that they can influence the development and application of curative treatments to those affected, besides promoting the exchange of information between experts, patients and their families, and promoting the development of pharmacology.
The Isabel Gemio Foundation focuses all its efforts on financing Scientific Research Projects that seek treatment or cure for Minority Diseases, known as “rare”, supporting basic biomedical, clinical and translational research of those groups that are leaders in Research in our country, fully or partially financing projects that are part of the CIBER Network.
About us
The founder, as our own name indicates, is the well-known Spanish journalist, Isabel Gemio. Along with it, we have a board of six people, who have a wide professional career, and among which include public figures, affected by rare diseases, media professionals, etc.
Our board of directors collaborates with our foundation in an altruistic way, contributing each of them the best in their field of activity.
Isabel Gemio
President
Journalist, television and radio presenter. He has presented programs like Tal cual, 3x4, La Tarde, Tonight sex, What you need is love and Surprise, surprise.
In Onda Cero has directed and presented "I give you my word."
Patronage
José María De Arcas
Vice president
Businessman, former counselor of Procisa, former counselor of Oesia Tecnología, former president of Oesia México. Bachelor in business and tourism activities.
Francisco José Hernández Ramos
Non-employer secretary
Married and with two children. Lawyer in practice since 1994. Managing Partner of the Law Firm. I collaborate with different foundations and NGOs, as secretary and legal adviser.
Antonio San José Pérez
Patron
Journalist. He has been the General Director of the television channel Non Stop People. Previously he has been the news director of CNN +, Canal + and Radio Nacional de España. He has also been Deputy Director of News at Antena 3 TV. In the field of corporate communication, he has held the positions of Communication Director and Institutional Relations of Aena and of State Lotteries and Bets.
Alvaro de Yturriaga
Patron
Entrepreneur by nature. Businessman by vocation Father for devotion. Passionate about technology. Fighter of neuromuscular diseases.
Koké Tejera
Patron
GRUPO ATRESMEDIA. Director of Public Relations that is composed of the following divisions: Antena 3 Televisión, Atresadvertising, Onda Cero, Europa FM, Melodia FM and LaSexta Televisión, coordinating all the public relations activities of the Atresmedia Group.
María Jesús Álava Reyes
Patron
Degree in Psychology from the Complutense University of Madrid, she is a professor at the Menéndez Pelayo International University. He has held various positions of responsibility in the Higher Council for Scientific Research, the Ministry of Development and Spanish Airports and Air Navigation (Aena). She is currently a Partner-Director of Apertia-Consulting and the Álava Reyes Psychology Center.
Luis Abril Pérez
Patron
Manager, general strategy advisor at the level of communication, corporate image and social networks.
Work team
The Foundation team consists of two workers.
María Romo
Director
PhD in Law and a degree in Law, Political Science and Sociology from the Complutense University of Madrid. Specialist in the European Union, institutional relations and third sector, especially foundations, participated in the drafting and follow-up of the III ACTION PLAN FOR PEOPLE WITH DISABILITIES OF THE COMMUNITY OF MADRID.
Beatriz García Leiva
Secretary
Degree in Psychology from the Complutense University of Madrid, with experience in the area of Human Resources. He joined the Foundation’s team in 2017 and actively collaborates in the activities and programs of the Foundation, as well as in the management procedures.
Organization chart
Scientific Comittee
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Dr. Adolfo López de Munain
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Dr. Juan Vilchez Padilla
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Dr. Adolfo López de Munain
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Dr. Juan Vilchez Padilla
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